Latest Posts

The PAN Foundation opens new spinal muscular atrophy patient assistance fund

The PAN Foundation today opened a new patient assistance program for people living with spinal muscular atrophy. Spinal muscular atrophy is a group of hereditary diseases that progressively destroy motor neurons that control essential muscle activity such as speaking, walking, breathing, and swallowing. It is a rare disease that affects the nervous system. The Spinal … Continued

Charitable patient assistance is a crucial safety net for millions, but it’s not enough

For years, independent charities like the PAN Foundation have provided financial assistance to millions of Medicare beneficiaries to help cover out-of-pocket prescription drug costs. However, from time to time, some policymakers and researchers have suggested that charitable assistance may be an influencing factor on drug costs. Recently, the PAN Foundation sponsored a study to investigate … Continued

George Valentine: the need for predictable out-of-pocket costs

George Valentine needed something from his elected representatives in Congress: securing predictable annual out-of-pocket costs under Medicare Part D’s prescription drug plan. From Texas to Singapore to a life-altering diagnosis George is a retiree who lives in Irving, Texas with his wife, Cheryl. For more than 40 years, George worked in IT, making his way … Continued

When it comes to mental health treatment for people on Medicare, we can’t ignore out-of-pocket medication costs

More than 21 million people in the United States live with a mood disorder like depression or bipolar disorder. And the toll these disorders can take is immense: U.S. Department of Health and Human Services figures show that these conditions account for up to 60 percent of the nation’s suicides each year. Mood disorders, although … Continued

The PAN Foundation opens new pancreatic cancer patient assistance fund

The PAN Foundation today opened a new patient assistance program for people living with pancreatic cancer. Pancreatic cancer is a cancer of the pancreas that affects the gastrointestinal system. The National Cancer Institute estimates that 57,600 people in the U.S. will be diagnosed with pancreatic cancer in 2020, representing about three percent of all cancers … Continued

Senior voters on Medicare: tracking their perspectives on healthcare entering the 2020 election

Historically, senior voters have been a critical voting bloc in presidential elections. As we enter an unpredictable election cycle, the PAN Foundation conducted a monthly survey between August to October 2020 to understand the issues of most importance as senior voters cast their ballots and to assess their support for an annual cap and a … Continued

2019 Annual Report

15 years of mission-driven progress In 2019, the PAN Foundation marked 15 years of helping people with serious and chronic illnesses start and stay on treatment. This year, we’ve deepened our dedication to increasing access to healthcare and advocating for patients. No one should ever have to skip or delay treatment because they can’t afford … Continued

The benefits of smoothing out-of-pocket costs for Medicare beneficiaries

In July 2020, the PAN Foundation along with the Berkeley Research Group surveyed 8,000 Medicare beneficiaries about Medicare affordability, caps on out-of-pocket costs in Medicare Part D, and their experience with charitable financial assistance. The survey provided new insights into the benefits of smoothing out-of-pocket costs throughout the year with a monthly cap compared to … Continued

The PAN Foundation and the Amyloidosis Foundation join forces to support people living with amyloidosis

Washington, D.C., July 10, 2020—The PAN Foundation and the Amyloidosis Foundation today announced they are launching a new partnership to offer a broad range of support for people living with amyloidosis.    Working together, the PAN Foundation and the Amyloidosis Foundation will ensure people living with amyloidosis have access to both financial and patient support … Continued

The PAN Foundation and the Cushing’s Support and Research Foundation announce partnership to support people with Cushing’s disease and syndrome

Washington, D.C., July 10, 2020—The PAN Foundation and the Cushing’s Support and Research Foundation today announced they are launching a new partnership to offer a broad range of support for people living with Cushing’s disease and Cushing’s syndrome.    Working together, the PAN Foundation and the Cushing’s Support and Research Foundation will ensure people living … Continued