The PAN Foundation and the Cushing’s Support and Research Foundation announce partnership to support people with Cushing’s disease and syndrome
Washington, D.C., July 10, 2020—The PAN Foundation and the Cushing’s Support and Research Foundation today announced they are launching a new partnership to offer a broad range of support for people living with Cushing’s disease and Cushing’s syndrome.
Working together, the PAN Foundation and the Cushing’s Support and Research Foundation will ensure people living with Cushing’s have access to both financial and patient support services, providing them the comprehensive resources needed to best manage their condition.
“Individals living with Cushing’s must often undergo extensive testing before a diagnosis is made, which can be frustrating for those experiencing challenging symptoms,” said PAN President and CEO Dan Klein. “Our alliance with the Cushing’s Support and Research Foundation will help reduce the burden of high out-of-pocket treatment costs while also connecting patients with the emotional support services needed to not only cope, but thrive.”
According to the Cushing’s Support and Research Foundation, Cushing’s is relatively rare and affects an estimated 10 to 15 people per million each year in the U.S.
“A diagnosis like Cushing’s can be life-changing and have a serious impact on an individual’s physical and mental health,” said Cushing’s Support and Research Foundation President Leslie Edwin. “We’re excited to utilize our partnership with the PAN Foundation to provide peace of mind to individuals who need financial assistance so that they have one less thing to worry about as they focus on improving their quality of life.”
Patients who qualify for the PAN Foundation’s Cushing’s Disease or Syndrome Assistance Program are eligible to receive $9,700 per year in financial assistance.
To get financial assistance for Cushing’s, patients must:
- Be getting treatment for Cushing’s disease or syndrome.
- Have health insurance that covers the qualifying medication or product.
- Have an income that falls at or below 500% of the Federal Poverty Level.
How to apply
Patients, caregivers or advocates applying on their behalf can apply for assistance using the PAN Foundation’s online patient portal, or by calling 1-866-316-7263, 9:00 a.m. to 5:30 p.m. ET, Monday through Friday.
About the PAN Foundation
The PAN Foundation is an independent, nationwide 501(c)(3) organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $3 billion in financial assistance to nearly 1 million patients who would otherwise be unable to afford their medications. To learn more, visit panfoundation.org.
About the Cushing’s Support and Research Foundation
The Cushing’s Support and Research Foundation was founded in 1995 to provide information and support to Cushing’s patients and their families. The Foundation was incorporated in the state of Massachusetts as a non-profit, 501(c)3 organization and has a Medical Advisory Board consisting of very experienced surgeons and endocrinologists who are world renowned for their expertise on Cushing’s. For more information, visit csrf.net.
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