Advocacy partners and coalitions

Stand with us

Our collaboration with coalitions, our alliance partner network, and other like-minded partner organizations ensures that our collective voice is stronger when we advocate for critical healthcare reform.

Coalitions and partners

We work with leading patient advocacy and support groups to advocate for policy solutions that improve healthcare access and affordability for patients. Our work educates key stakeholders, including Congress, the Centers for Medicare and Medicaid Services, and the administration, about the impact and urgency of healthcare reform.

Alliance for Connected Care

The Alliance for Connected Care is dedicated to improving access to care through the reduction of policy, legal, and regulatory barriers to the adoption of telemedicine and remote patient monitoring. The Alliance works in partnership with an advisory board made up of a distinguished group of patient and provider advocacy organizations who wish to better utilize the opportunities created by telehealth.

All Copays Count Coalition 

The All Copays Count Coalition includes more than 60 organizations serving the interests of people with complex and chronic health conditions who rely on copay assistance to afford life-saving medications. A key focus of the coalition is removing barriers to care caused by copay accumulator policies.  

Global Genes

Global Genes provides hope for the more than 400 million people affected by rare disease around the globe. They help patients find and build communities, gain access to information and resources, connect to researchers, clinicians, industry, government, and other stakeholders, share data and experiences, stand up, stand out, and become effective advocates on their own behalf.

Medicare Access for Patients Rx 

Medicare Access for Patients Rx (MAPRx) is a coalition of organizations representing patients, family caregivers, and health professionals. They are committed to safeguarding the well-being of patients with chronic diseases and disabilities who rely on prescription drug coverage through Medicare Part D. A key focus of the coalition is Medicare reform that will enhance access and affordability of treatment. 

National Health Council

The National Health Council (NHC) brings diverse organizations together to forge consensus and drive patient-centered health policy. They promote increased access to affordable, high-value, sustainable, equitable health care. Made up of more than 150 national health-related organizations and businesses, the NHC’s core membership includes the nation’s leading patient organizations.

National Minority Health Association

The National Minority Health Association (NMHA), a not-for-profit organization founded in 1988, achieved its initial mission of ensuring the establishment of Offices of Minority Health in all 50 states. Today the NMHA is deploying Operation Healthy You™ (OHY), a program that identifies areas of healthcare disparity and works with healthcare providers and community resources to address identified needs. The program is intended to lower the long-term overall cost of healthcare and improve outcomes for minority and underserved communities.

OutCare

OutCare is leading the charge for LGBTQ+ health equity worldwide, empowering millions of LGBTQ+ individuals with resources, support, and education. Their initiatives include the OutList, a directory of affirming healthcare providers, plus mentorship, training, support groups, consulting services, and more.

Partnership for Part D Access

The Partnership for Part D Access is a collection of healthcare stakeholders, including patient groups, advocacy organizations and allied members of industry, who are committed to maintaining beneficiary access to the full range of available medications under Medicare Part D. The Partnership represents and cares about individuals who would be negatively impacted by changes to Medicare’s “protected classes” policy.

Rare Disease Diversity Coalition

Launched in 2020 by The Black Women’s Health Imperative, RDDC is a partnership of the nation’s leading rare disease experts, patient and provider organizations, and health equity advocates working to address the extraordinary challenges faced by historically underserved populations with a rare disease. Through research, advocacy, and collaboration, RDDC aims to advance evidence-based solutions to achieve greater equality within the rare disease community.

Alliance partners

People with serious health conditions—and their families and caregivers—need support beyond financial assistance.  

We partner with national patient advocacy organizations that offer help with the complex physical, emotional, and practical realities of life-threatening, chronic, and rare diseases. When patients come to the PAN Foundation for financial assistance related to a specific disease state, they can opt in to receive follow-up education and support services from a dedicated alliance partner.  

We also work with our alliance partner network on shared advocacy goals, bringing a cohesive and compelling voice to the affordability challenges faced by patients.  

Healthy People 2030 Champion Program

As a Healthy People 2030 Champion, PAN has demonstrated a commitment to helping achieve the Healthy People 2030 vision of a society in which all people can achieve their full potential for health and well-being across the lifespan. The Office of Disease Prevention and Health Promotion recognizes PAN, along with other Healthy People 2030 Champions, as part of a growing network of organizations partnering with ODPHP to improve health and well-being at the local, state, and tribal level. 

Healthy People 2030 Champion is a service mark of the U.S. Department of Health and Human Services. Used with permission. Participation by the PAN Foundation does not imply endorsement by HHS/ODPHP.

Friends of PAN

In addition to our alliance partner network, we work with like-minded national organizations to raise awareness about the availability of financial assistance, connect patients with needed resources, and advocate for patient-centered reforms. We work with: 

• Patient advocacy organizations 
• Organizations focused on older adults and aging services 
• Public health agencies 
• Healthcare provider associations  
• Pharmacy organizations 
• Caregiver groups 
• Disability organizations 
• Policy organizations 
• Online community networks 
• Academic institutions 
• Health research organizations 

Contact us

If your organization is interested in working with us, please reach out to discuss how we can collaborate on behalf of patients. Use our online inquiry form and select “partner with us” as your topic.