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The PAN Foundation and the Amyloidosis Foundation join forces to support people living with amyloidosis

Washington, D.C., July 10, 2020—The PAN Foundation and the Amyloidosis Foundation today announced they are launching a new partnership to offer a broad range of support for people living with amyloidosis.   

Working together, the PAN Foundation and the Amyloidosis Foundation will ensure people living with amyloidosis have access to both financial and patient support services, providing them the comprehensive resources needed to best manage their condition.

“Amyloidosis is a rare and complicated condition that often requires extensive and ongoing treatment,” said PAN President and CEO Dan Klein. “Our alliance with the Amyloidosis Foundation will offer individuals with amyloidosis the wraparound support services they need to feel encouraged and empowered as they brave their course of treatment.”

According to the Amyloidosis Foundation, amyloidosis affects less than 200,000 people in the U.S. However, many experts suspect that amyloidosis is underdiagnosed.

“For people living with amyloidosis, treatment can’t wait. Early diagnosis and treatment initiation are key to managing their condition and extending their lifespan,” said Amyloidosis Foundation President Mary O’Donnell. “Our goal in partnering with the PAN Foundation is to alleviate the financial burden of treatment costs so people living with amyloidosis can have uninterrupted access to vital medications and stay hopeful on their care journey.”

Patients who qualify for the PAN Foundation’s Amyloidosis Assistance Program are eligible to receive $7,800 per year in financial assistance.

Eligibility requirements
To get financial assistance for amyloidosis, patients must: 

  • Be getting treatment for amyloidosis.
  • Have Medicare health insurance that covers the qualifying medication or product.
  • Have an income that falls at or below 500% of the Federal Poverty Level.

How to apply
Patients, caregivers or advocates applying on their behalf can apply for assistance using the PAN Foundation’s online patient portal, or by calling 1-866-316-7263, 9:00 a.m. to 5:30 p.m. ET, Monday through Friday.

About the PAN Foundation
The PAN Foundation is an independent, nationwide 501(c)(3) organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $3 billion in financial assistance to nearly 1 million patients who would otherwise be unable to afford their medications. To learn more, visit panfoundation.org

About the Amyloidosis Foundation
The Amyloidosis Foundation is world’s leading community for people with amyloidosis, their loved ones, and those who are working to find a cure. The Foundation began with the vision of two patients, Don Brockman and Dennis Krysmalski. Don’s desire to support research and Dennis’s commitment to support patients and increase awareness has been the driving force behind the foundation for the past 16 years. Don’s widow, Mary O’Donnell, has led the foundation to become the success it is today. For more information, visit amyloidosis.org.

MEDIA CONTACT

Liz Eckert
Director of Marketing and Communications
Email: leckert@panfoundation.org