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PAN announces 2025 healthcare policy and education priorities

The PAN Foundation, a leading charitable foundation and healthcare advocacy organization, today announced its healthcare policy and education priorities for 2025. Through these priorities, PAN outlines the legislation we will champion and our approach to patient education as we work to increase equitable access to healthcare for all. “In addition to providing critical financial assistance … Continued

The PAN Foundation announces its 2025 Patient and Family Advisory Council

Today, the PAN Foundation announced its 2025 Patient and Family Advisory Council (PFAC) members. The PFAC includes 14 members, each of whom have received support from the PAN Foundation as a patient or serve as a family member, friend, or caregiver to someone who has. In this role, they serve as key ambassadors and advisors … Continued

PAN’s Center for Patient Research polling on healthcare financial stress featured in Benefits Pro

The PAN Foundation’s Center for Patient Research recently released findings of a new national poll which found that found many commercially insured people are nervous about their out-of-pocket healthcare costs, among other key findings. This Benefits Pro article highlights some of these key findings, including the fact that 61 percent of people with commercial insurance … Continued

PAN patient advocate featured in NBC News story about new Medicare Part D cap

On January 1, 2025, a new $2,000 annual out-of-pocket cap for Medicare Part D drugs went into effect as a result of the Inflation Reduction Act. For many, especially those who rely on medications with high out-of-pocket costs, this new reform is especially welcomed news. A recent story from NBC News highlights how this new … Continued

The Patient Access Network Foundation announces its 2025 Board of Directors

Today, the PAN Foundation—one of the nation’s leading healthcare advocacy and charitable patient assistance foundations—announced its 2025 Board of Directors, which provides governance, oversight, and strategic direction to the organization. In addition to welcoming two new board members, the PAN Foundation also announced its 2025 slate of board officers, which include: The following new directors … Continued

PAN opens hypophosphatasia copay and insurance premium funds

The PAN Foundation today opened a prescription medication copay financial assistance program and health insurance premium financial assistance program for people living with hypophosphatasia (HPP). For eligible patients, the copay program provides up to $5,200 per year, while the premium program provides up to $4,800 per year in financial assistance. HPP is an inherited, rare … Continued

PAN launches insurance premium fund for myasthenia gravis

The PAN Foundation today opened a new myasthenia gravis health insurance premium financial assistance program, providing up to $2,600 to help eligible patients pay for their out-of-pocket health insurance premium costs. Myasthenia gravis is a chronic autoimmune, neuromuscular disease that causes weakness in the skeletal muscles, which the body uses for breathing and movement. According … Continued

PAN opens new neurofibromatosis insurance premium fund

The PAN Foundation today opened a new neurofibromatosis insurance premium financial assistance program, providing up to $4,700 to help eligible patients pay for their out-of-pocket health insurance premium costs. Neurofibromatosis (NF) encompasses a group of rare genetic disorders that cause tumors to grow on nerve tissue, including the brain, spinal cord, and eyes. There are … Continued

PAN opens new insurance premium fund for people living with paroxysmal nocturnal hemoglobinuria

The PAN Foundation today opened a new paroxysmal nocturnal hemoglobinuria premium fund, providing up to $4,700 to help eligible patients pay for their out-of-pocket health insurance premium costs. Paroxysmal nocturnal hemoglobinuria (PNH), also known as Marchiafava–Micheli syndrome, is a rare disorder in which red blood cells break down prematurely, which can lead to bone marrow … Continued

PAN Foundation welcomes new Medicare Part D cap and Medicare Prescription Payment Plan, emphasizes importance of education 

Today, the PAN Foundation expressed support for two new Medicare Part D reforms that went into effect on January 1, 2025, as a result of the Inflation Reduction Act—a $2,000 annual out-of-pocket cap and the Medicare Prescription Payment Plan. These new changes could help millions of people afford their out-of-pocket prescription costs and save money, … Continued