PAN opens hypophosphatasia copay and insurance premium funds

The PAN Foundation today opened a prescription medication copay financial assistance program and health insurance premium financial assistance program for people living with hypophosphatasia (HPP). For eligible patients, the copay program provides up to $5,200 per year, while the premium program provides up to $4,800 per year in financial assistance.

HPP is an inherited, rare disorder that affects the development of bones and teeth, which can make them weaker and more prone to deformities or breaking easily. It can present in various forms depending on the age of diagnosis and the severity of symptoms. According to the Orphanet Journal of Rare Diseases, the prevalence of severe forms of HPP has been estimated at 1 in 100,000 while the prevalence of moderate forms of the disease is estimated to be much higher. 

“While HPP is a rare disease affect a very small number of patients in the U.S., it can lead to severe consequences that impact a person’s quality of life if untreated,” said Kevin L. Hagan, PAN’s President and CEO. “We are pleased to open these critical copy and premium funds thanks to the support of PAN’s generous donors, allowing us to ease the financial burden for those living with hypophosphatasia.”

Patients who qualify for the copay program are eligible to receive up to $5,200 per year in financial assistance to pay for the deductibles, copays, and coinsurance costs associated with their treatment for hypophosphatasia. Patients who qualify for the premium program are eligible to receive up to $4,800 per year in financial assistance to pay for their health insurance premiums.

Check the status of PAN’s hypophosphatasia financial assistance funds and find out if you’re eligible:

Eligibility requirements

To get copay or premium assistance for hypophosphatasia, patients must:

• Be getting treatment for hypophosphatasia. 
• Have health insurance that covers the qualifying medication or product. 
• Take a medication or product listed on PAN’s list of covered medications. 
• Have an income that falls at or below 400 percent of the federal poverty level. 
• Reside and receive treatment in the United States or U.S. territories. (U.S. citizenship is not a requirement) 

Note that an individual patient may be eligible for financial assistance from both the hypophosphatasia copay and premium programs as long as they meet eligibility requirements and funding is available.

How to apply

You can apply online 24/7 through the PAN portal or by phone. To apply by phone, call us at 1-866-316-7263 Monday through Friday, 9 a.m. to 5:30 p.m. ET.

Healthcare professionals can apply online through the PAN portal or by phone on behalf of their patients. 

Other patient support services at PAN

Apply for a transportation grant 

PAN grant recipients may also qualify for transportation assistance to allow them to get to and from activities that improve their overall health outcomes, including healthcare services, social connection and support, and more. Check your eligibility to learn more. 

Connect with a patient support organization 

PAN recognizes that people with serious health conditions—and their families and caregivers—need support beyond financial assistance. That’s why we partner with more than 25 leading patient advocacy groups to connect people to communities that can offer support with the complex physical, emotional, and practical realities of life-threatening, chronic, and rare diseases. Learn more about our partners.  

About the PAN Foundation 

As a leading charitable foundation and healthcare advocacy organization, the PAN Foundation is dedicated to accelerating access to treatment for those who need it most and empowering patients on their healthcare journeys. We provide critical financial assistance for treatment costs, advocate for policy solutions that expand access to care, and deliver education on complex topics—all driven by our belief that everyone deserves access to affordable, equitable healthcare.    

Since 2004, our financial assistance programs have helped more than 1.2 million people to start or stay on life-changing treatment. In addition, we’ve achieved major policy victories that increase access to care, mobilized patient advocates to call for change, and educated people nationwide on critical healthcare-related topics. We’re committed to working towards a future where equitable health outcomes are a reality for all. Learn more at panfoundation.org.