Latest Posts

Phyllis: leaning on family and advocating for others

In a suburb in Texas, Phyllis has built a community of support around herself over the past 20 years. This community includes her mother who lives with Phyllis for six months each year, the kids that live next door who she views as her own children, and her brothers who stepped up as caregivers following … Continued

Despite historic Medicare reforms, charitable assistance programs still critical for many

A recent analysis conducted by Avalere Health—sponsored by the PAN Foundation—projects more than 2.6 million non-low-income subsidy Medicare Part D beneficiaries will have out-of-pocket spending high enough to reach the new $2,000 annual out-of-pocket cap on prescription medications in 2025, the year it goes into effect. In addition, about 800,000 beneficiaries in 2024 and more … Continued

New lysosomal acid lipase deficiency fund opens

The PAN Foundation today opened a new financial assistance program for people living with lysosomal acid lipase deficiency providing up to $2,100 per year for eligible patients.     Lysosomal acid lipase deficiency—also known as Wolman disease or cholesterol ester storage disease—is a rare inherited condition characterized by the inability to breakdown and use fats and cholesterol … Continued

Announcing our 2023 healthcare policy and education priorities

The PAN Foundation today announced its healthcare policy and education priorities for 2023, outlining six recommendations for Congress and the administration that will improve health equity and access to healthcare. At PAN, we recognize the important role we have in increasing access to affordable care and removing long-standing health inequities. PAN commits to this responsibility … Continued

The PAN Foundation welcomes Mia Harmon as Chief Compliance and Privacy Officer

The PAN Foundation is excited to announce that Mia Harmon has joined its leadership team as incoming Chief Compliance and Privacy Officer. Harmon brings more than a decade of diverse experience in healthcare compliance and operations, healthcare privacy, and law. As PAN’s Chief Compliance and Privacy Officer, she is responsible for the oversight and implementation … Continued

New pemphigus vulgaris fund opens

The PAN Foundation today opened a new financial assistance program for people living with pemphigus vulgaris, providing up to $6,600 per year for eligible patients.  Pemphigus vulgaris is a rare autoimmune disorder of the skin, which involves blistering and sores of the skin and mucous membranes. About three in every 100,000 people in the U.S. … Continued

The Patient Access Network Foundation announces its 2023 Board of Directors

The PAN Foundation announces today its 2023 Board of Directors, which provides governance, oversight, and strategic direction to the organization. In addition to welcoming four new board members, PAN also announced its 2023 slate of board officers, which include: The following new directors join the PAN Board in 2023: PAN Board members continuing to serve … Continued

PAN Foundation applauds Congress for inclusion of key health provisions

The PAN Foundation thanks Congress for including several key health provisions as part of the year-end omnibus spending billpassed late last week. These key provisions include a two-year extension of the pandemic-era Medicare telehealth policy, requirements for the U.S. Food and Drug Administration (FDA) to increase representation and engagement of clinical trial participants, and an … Continued

CNET: Heath care is too expensive

In a recent series called Priced out: coping with the high cost of living in America, CNET explored the high cost of healthcare and the role patients are playing in advocating for lower costs. In speaking with experts and patients, the article highlighted some of the challenges securing health insurance, the importance of understanding out-of-pocket … Continued

The PAN Foundation encourages Congress to extend Medicare telehealth coverage

With the current Congress considering an omnibus spending bill as it nears the end of the year, the PAN Foundation encourages the extension of the pandemic-era telehealth rules allowing Medicare patients to access telehealth services more easily. The current rules, which allows Medicare beneficiaries to have virtual visits from their homes, are set to expire … Continued