Latest Posts

New hemolytic uremic syndrome premium fund opens

The PAN Foundation today opened a new hemolytic uremic syndrome premium fund, providing up to $4,700 per year to help eligible patients pay for their out-of-pocket health insurance premium costs. Hemolytic uremic syndrome (HUS) is a rare condition that occurs when damaged red blood cells form clots and cause a life-threatening kidney injury. When left … Continued

New lysosomal acid lipase deficiency premium fund opens

The PAN Foundation today opened a new lysosomal acid lipase deficiency premium fund, providing up to $4,700 per year to help eligible patients pay for their out-of-pocket health insurance premium costs. Lysosomal acid lipase deficiency (LAL-D), also known as Wolman disease or cholesterol ester storage disease (CESD), is an inherited genetic condition in which the … Continued

HR.com: What employers need to know about alternative funding programs and drug carveouts

For many people with employer-sponsored health benefits, healthcare coverage satisfaction is a major factor in deciding whether to stay with their current employer. This can be especially true for employees with chronic conditions and those who care for others with chronic conditions, as health benefits can be crucial for affording care and/or specialized treatments. But … Continued

National polling: Many patients enrolled in Medicare Part D unfamiliar with new cost-saving reform

A recent national poll from the PAN Foundation finds that, although 79 percent of adults covered by Medicare are enrolled in Medicare Part D, many are unfamiliar with a key reform that went into effect on January 1, 2024. The elimination of the five percent prescription cost-sharing obligation in the catastrophic phase for Medicare Part … Continued

Wall Street Journal: How to put a lid on your drug costs in 2024

Health insurance deductibles reset on January 1, and for many people, this means paying high out-of-pocket costs—potentially thousands of dollars—to access the medications they need. The Wall Street Journal published an article with tips to curb prescription costs, which featured FundFinder, the free online tool that the PAN Foundation created to help people search for … Continued

The Patient Access Network Foundation announces its 2024 Board of Directors

Today, the Patient Access Network (PAN) Foundation—one of the nation’s leading patient advocacy and charitable patient assistance foundations—announced its 2024 Board of Directors, which provides governance, oversight, and strategic direction to the organization. In addition to welcoming three new board members, the PAN Foundation also announced its 2024 slate of board officers, which include: The … Continued

Pharmacy Times: Alternative funding programs affect our most vulnerable patient populations

Throughout 2023, alternative funding programs (AFPs) have become a widely discussed topic among healthcare advocates and stakeholders. A key reason for that is these programs can have detrimental effects on vulnerable patient populations. The rise and impact of AFPs is the topic of an article in Pharmacy Times, co-authored by PAN Foundation Chief Advocacy and … Continued

Pharmaceutical Commerce: Continued affordability challenges in the offing

Starting on January 1, 2024, individuals with Medicare Part D coverage may start to see their out-of-pocket (OOP) costs for prescription medications decline, the latest Medicare reforms enacted through the Inflation Reduction Act to take effect. More changes are ahead when additional reforms, including the $2,000 annual cap on out-of-pocket prescription costs, take effect in … Continued

New partnership with International Pemphigus & Pemphigoid Foundation

The PAN Foundation and the International Pemphigus & Pemphigoid Foundation today announced they are launching a new partnership to help people living with pemphigus vulgaris, providing up to $6,600 per year in financial assistance and support services for patients and their caregivers or loved ones.   Pemphigus vulgaris (PV) is a rare autoimmune disorder of the … Continued

National polling: Low awareness of Medicare’s Extra Help program points to need for more education

A recent national poll from the PAN Foundation finds that most adults in the U.S. have either never heard of the federal Medicare Part D Low-Income Subsidy Program, also known as the Medicare Extra Help program, or don’t know what it does.   Key findings include:   “As a leading advocate for an expansion of this program … Continued