New hemolytic uremic syndrome premium fund opens

The PAN Foundation today opened a new hemolytic uremic syndrome premium fund, providing up to $4,700 per year to help eligible patients pay for their out-of-pocket health insurance premium costs.

Hemolytic uremic syndrome (HUS) is a rare condition that occurs when damaged red blood cells form clots and cause a life-threatening kidney injury. When left untreated, HUS can result in numerous complications such as chronic kidney disease, stroke, and heart problems. The National Institute of Diabetes and Digestive and Kidney Diseases estimates that this disease occurs in about two of every 100,000 children.

“This condition, which is often diagnosed in childhood, can require a lifetime of care and costly treatment. We are thrilled to expand our support for people living with HUS to include premium assistance, which will help people pay for their insurance and access their needed medications,” said PAN Foundation President and CEO, Kevin L. Hagan. “We would not be able to provide this financial support to our patients without the generosity of our donors, for whom we are grateful. We are also proud to offer our patients support services through the National Kidney Foundation, one of our valued alliance partners.”

The National Kidney Foundation offers a patient-to-patient support program, guidance from specialists, educational resources, and more. Learn more on their website, kidney.org.

Patients who qualify are eligible to receive $4,700 in financial assistance to pay for their health insurance premiums. Learn more about PAN Foundation health insurance premium funds and other support we provide on our website.

Eligibility requirements

To get premium assistance for hemolytic uremic syndrome, patients must:   

• Be getting treatment for hemolytic uremic syndrome. 
• Have health insurance that covers the qualifying medication or product.  
• Have an income that falls at or below 400 percent of the federal poverty level.  

How to apply

Patients or caregivers applying on their behalf can apply for assistance using the PAN Foundation’s online patient portal. To apply on behalf of a patient, providers can use the provider portal, while pharmacists can use the pharmacy portal. A series of how-to guides are also available for the patient portal, including common tasks like creating an account and applying for assistance online.

Other patient support services at PAN

Apply for transportation assistance

PAN grant recipients may also qualify for transportation assistance to allow them to get to and from activities that improve their overall health outcomes, including healthcare services, social connection and support, and healthy and nutritious food. Check your eligibility to learn more.

Connect with a patient support organization

PAN recognizes that people with serious health conditions—and their families and caregivers—need support beyond financial assistance. That’s why we partner with more than 25 leading patient advocacy groups to connect people to communities that can offer support with the complex physical, emotional, and practical realities of life-threatening, chronic, and rare diseases. Learn more about our partners.

About the PAN Foundation
The PAN Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications.  

Since 2004, we have provided nearly 1 million underinsured patients with $4 billion in financial assistance. Partnering with generous donors, healthcare providers, and pharmacies, we provide the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Learn more at panfoundation.org.