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Give nowFor the 30 million patients in the U.S. who have been diagnosed with a rare disease, figuring out how to pay for their out-of-pocket prescription costs can be challenging. In this Global Genes blog post, titled “Finding Financial Assistance for Rare Diseases in the U.S.,” the PAN Foundation’s Chief Mission Officer, Amy Niles, highlights the … Continued
The PAN Foundation today reopened a financial assistance program for people living with myelodysplastic syndromes, providing up to $6,800 per year for eligible patients. Myelodysplastic syndromes, also known as MDS, are a group of rare blood diseases that can occur when the body does not make enough healthy blood cells, causing problems in the bone … Continued
Janice doesn’t take a single trip to the dog park or the grocery store for granted. There was a long period when just walking from her car into the house took all her strength. She was working as a nurse practitioner in Kansas in 2012 when she started to experience shortness of breath and fatigue … Continued
The Patient Access Network (PAN) Foundation today joined the Partnership for Part D Access, a collection of 40 patient groups, advocacy organizations, and allied members of the healthcare industry committed to maintaining access to the full range of available medications under Medicare Part D. The Partnership for Part D Access is specifically focused on ensuring … Continued
The Patient Access Network (PAN) Foundation today announced its upcoming clinical trial education initiative, which will launch in fall 2024. This groundbreaking initiative aims to provide individuals with unbiased information and support to increase participation and representation in clinical trials. Why clinical trial education matters At the PAN Foundation, we recognize the critical need for … Continued
The PAN Foundation joined a letter from All Copays Count Coalition to the Secretaries of the US Departments of Labor, Health and Human Services, and the Treasury, urging them to ensure that any revision to the cost-sharing rule for copay accumulator adjustment policies includes protections that guarantee copayments made by patients count toward their annual … Continued
For patients who have been diagnosed with a chronic or rare disease, or life-threatening illness, figuring out how to pay for their out-of-pocket prescription costs can be challenging. In fact, nearly three in 10 people in the U.S. struggle to afford the medications they need according to a KFF poll from last year. This TIME Magazine article, … Continued
Alliance for Aging Research and the PAN Foundation submitted comments to the Centers for Medicare & Medicaid Services on the latest model documents for implementing critical elements of the Medicare Prescription Payment Plan (M3P). The suggestions provided in the joint letter aim to ensure that Medicare patients can easily access and benefit from the policy … Continued
Karen thought she knew her way around the healthcare system. After all, she worked for nearly 50 years as a registered nurse, specializing in orthopedic surgery. What’s more, Karen has lived with multiple sclerosis (MS) since 2006. Managing this chronic autoimmune disease, among other health conditions, has involved countless medical appointments, tests, and treatments. “I’m … Continued
The Patient Access Network (PAN) Foundation applauds U.S. Senators Roger Marshall, MD (R-KS), Kyrsten Sinema (I-AZ), John Thune (R-SD), Sherrod Brown (D-OH), and U.S. Representatives Mike Kelly (R-PA), Suzan DelBene (D-WA), Larry Bucshon, MD (R-IN) and Ami Bera, MD (D-CA) for reintroducing the Improving Seniors’ Timely Access to Care Act last week. This bipartisan, bicameral … Continued
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