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Give nowThere are 25 to 30 million people in the United States living with a rare disease, according to the National Institutes of Health, or roughly the combined population of Sweden, Norway and Finland. Treating chronic and rare diseases often comes with high out-of-pocket costs, and in the U.S., even those who have health insurance coverage … Continued
The PAN Foundation joined 18 other healthcare advocacy organizations in a letter from the Alternative Funding Task Force to the Departments of Labor, Health and Human Services, and the Treasury, urging them to ensure that the Affordable Care Act (ACA)’s cost-sharing requirements apply to all prescription drugs covered by all non-grandfathered health insurance plans. The … Continued
The PAN Foundation submitted a letter to Senators Roger Marshall and Ben Ray Lujan in support of the Electronic Prior Authorization for Prescription Drugs Act (S. 4349). The legislation, introduced by the Senators, would streamline prior authorization by mandating that health plans implement a secure electronic system for the transmission of requests, in accordance with … Continued
The PAN Foundation’s State of Patient Access report was the focus of a recent podcast from Movement for Life, a nonprofit that supports health equity driven organizations. The group’s Health Disparities podcast features conversations with people working to eliminate inequity in health. In this episode, PAN Foundation Chief Mission Officer Amy Niles talked about State … Continued
If anything, 35+ years of living with a chronic illness has given Jeff a sense of perspective. The Florida resident was diagnosed in 1990 with polycythemia vera, a rare blood cancer where the bone marrow produces too many red and white blood cells. He noticed shortness of breath during everyday tasks like yard work—and recognized … Continued
A recent national poll from the PAN Foundation’s Center for Patient Research finds that nearly half (48 percent) of insured adults say their health insurance plan has required prior authorization in the past year. Of those, two-thirds (67 percent) of adults say these prior authorization requirements delayed their access to prescribed medication or medical treatment—most … Continued
In a letter to the Centers for Medicare and Medicaid Services (CMS), the PAN Foundation recommends ways in which Medicare Advantage (MA) data collection and transparency can improve processes, including: Read our letter and supporting materials here:
The PAN Foundation joined 55 other healthcare advocacy groups in a letter to the Subcommittee of Labor, Health and Human Services, Education, and Related Agencies asking them to include report language in the Fiscal Year 2025 Labor, Health, and Human Services Subcommittee report regarding the implementation of the Medicare Prescription Payment Plan (MPPP) to ensure … Continued
The PAN Foundation and 106 other patient and provider organizations of the Safe Step Act Ad Hoc Coalition submitted a letter to members of the Congressional Committee on Education and the Workforce, urging them to mark up and advance H.R. 2630, the Safe Step Act. Insurance-mandated step therapy is a utilization management protocol that requires … Continued
The PAN Foundation joined the National Council on Aging and 25 other patient and healthcare advocacy organizations in submitting a letter to the Centers for Medicare & Medicaid Services (CMS) requesting that they take several steps to enhance access to financial help through the Medicare Part D Low-Income Subsidy program, also known as the Extra … Continued
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