PAN’s financial assistance, advocacy, and education featured in Rare Revolution Magazine
Information about this website: Following the March 2026 merger of Patient Advocate Foundation and the PAN Foundation, this website is now a part of Patient Advocate Foundation and remains active during our website transition.
Where to find information during our transition:
- About the merged organization: uniting.patientadvocate.org
- Financial assistance: totalassist.org
- Additional direct patient services and resources: patientadvocate.org
- Education: panfoundation.org and education.patientadvocate.org
- Clinical trials education: clinicaltrials.panfoundation.org
- Advocacy: npaf.org
- Research: patientinsightinstitute.org
There are 25 to 30 million people in the United States living with a rare disease, according to the National Institutes of Health, or roughly the combined population of Sweden, Norway and Finland.
Treating chronic and rare diseases often comes with high out-of-pocket costs, and in the U.S., even those who have health insurance coverage are worried about the price of managing their health.
In this article for Rare Revolution Magazine, PAN’s Chief Mission Officer Amy Niles talks about the important safety net role of charitable patient assistance foundations and discusses how to connect with financial assistance and educational resources. She also highlights the more than 25 rare disease financial assistance funds offered by PAN, and PAN’s advocacy work to support patients and their loved ones across the country.
Rare Revolution is published by NRG Collective Ltd., a not-for-profit media company specializing in rare disease content. This international publication focuses on the rare disease community worldwide.