During the Biotechnology Innovation Organization’s (BIO) monthly patient advocacy coffee chat entitled “Show Me the Evidence: Data to Understand and Break Down Patient Access Barriers,” PAN’s Chief Mission Officer, Amy Niles, shared her perspective. “Data makes you credible; stories make you memorable,” said Amy. In this BIO blog post about the coffee chat, Amy highlights … Continued
Informa Connect’s news site Access Insider interviewed Amy Niles, chief mission officer of the PAN Foundation, about the 2025 State of Patient Access report, barriers to healthcare access, advocacy, and the need for action. In the interview with Access Insider, Niles discussed the five dimensions of the report scorecard, as evaluated by patients in a … Continued
Only two in five patients know whether their insurance plan uses common practices that prevent access to treatment and increase patient costs. PAN Foundation’s Center for Patient Research released findings from a national poll exploring the awareness and understanding levels of financial assistance programs for healthcare-related expenses and challenges people face navigating their healthcare plans. … Continued
The Medicare Prescription Payment Plan is a new voluntary Medicare Part D payment option that went into effect on January 1, 2025, which patients must opt-in to. This program lets patients spread their out-of-pocket drug payments throughout the calendar year but won’t lower them. Patients can opt in to the program through both traditional Medicare … Continued
The PAN Foundation joined a letter signed by 80 organizations representing patients, providers, and public health advocates to the Department of Labor, urging them to issue a promised federal rule that would close a harmful loophole in the enforcement of Essential Health Benefits (EHBs) provision of federal law. This loophole allows health insurers, pharmacy benefit … Continued
Most Americans polled said Medicare cuts would impact their healthcare—and are unsure about how they will access services, from dental to hospice care. A recent national poll from the PAN Foundation’s Center for Patient Research finds that among adults in the U.S. with experience or exposure to Medicaid or the Children’s Health Insurance Program (CHIP) … Continued
In this article for Pharmaceutical Commerce, PAN Foundation Chief Mission Officer Amy Niles, highlights key findings from the 2025 State of Patient Access Report and identifies potential solutions to addressing the challenges patients face. She emphasizes that the PAN Foundation remains committed to working with policymakers, patients, healthcare professionals, and patient advocacy organizations to help … Continued
In a recent episode of their podcast, Call for Caring—an organization working to bring resources to family caregivers and their loved ones—interviewed PAN Foundation’s Chief Mission Officer, Amy Niles, about navigating financial assistance and the role of caregivers. During the interview, Amy also highlighted the mission of PAN and the 80+ diseases funds offered through … Continued
As we wrap up the first quarter of 2025, PAN’s Center for Patient Research has released a series of reports that give voice to patient challenges with healthcare access and affordability—and present an opportunity for policy decisions that support patients first. In just three short months, the PAN Foundation’s Center for Patient Research has released … Continued
On January 1, 2025, two new Medicare Part D reforms went into effect as a result of the Inflation Reduction Act–an annual out-of-pocket cap on prescription medication costs and the Medicare Prescription Payment Plan. This interview from Pharmaceutical Commerce features PAN Foundation President and CEO, Kevin L. Hagan, talking about the challenges patient assistance programs … Continued
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