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PAN Summit hosts 75 patient advocates in D.C. to urge Congress to improve healthcare access and affordability

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PAN’s third annual Advocacy Action Summit brought together patient advocates from 28 U.S. states for powerful collective action, attending over 300 legislative meetings to advocate for equitable, affordable healthcare access. From September 7-9, 2025, the PAN Foundation hosted its third annual in-person Advocacy Action Summit in Washington, D.C., including a day on Capitol Hill meeting … Continued

PAN Foundation submits comments on 2026 payment policies rule

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The PAN Foundation submitted a letter to the Centers for Medicare and Medicaid Services Administrator with comments on the CMS 2026 Physician Fee Schedule Proposed Rule, which addresses telehealth services, medically necessary dental health services, and patient and provider education about policies. PAN supports CMS’s proposal to streamline the Medicare Telehealth Services List review process … Continued

PAN joins 85+ healthcare organizations in a letter urging CMS to expand coverage of obesity treatments under Medicare Part D and B

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The PAN Foundation signed on to a letter from more than 85 healthcare organizations, patient advocacy groups, and medical associations to the Centers for Medicare & Medicaid Services Administrator, urging him to include access for Medicare recipients to evidence-based obesity treatments in an upcoming proposed rule. Obesity is a treatable chronic disease that plays a … Continued

Rita and Hannah: advocacy is a family affair

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Rita’s journey to afford her breast cancer treatment led her to join PAN in advocating for healthcare access for all. Her granddaughter Hannah has fought by her side. Rita is a natural community builder and advocate. When she’s not teaching technology classes for older adults at the public library, or hosting weekly soup nights at … Continued

People enrolled in Medicare face challenges accessing and affording obesity medications

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Most Medicare patients prescribed a medication for obesity report the drug was not covered by their insurance—and about half never start because of declined coverage or out-of-pocket costs. A recent national poll from the PAN Foundation’s Center for Patient Research finds that most people (85 percent) enrolled in Medicare or Medicare Advantage who have been … Continued

PAN joins letter to Congress in support of Clinical Trial Modernization Act

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The PAN Foundation joined a letter with 130 other patient advocacy, public health, and healthcare provider organizations to Congress to express strong support for H.R. 3521, the Clinical Trial Modernization Act. Clinical trials are crucial to advancing new standards of care that can improve survival and quality of life for people with cancer and other … Continued

People want to advocate for healthcare policy changes, but need to be invited and given a place to start

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A quarter of adults with a chronic health condition have advocated for healthcare policy changes in the past year. A recent national poll from the PAN Foundation’s Center for Patient Research finds that over the past 12 months, 1 in 4 (24 percent) adults with any chronic health condition have advocated for policy, legislation, and/or … Continued

Specialty Pharmacy Continuum features PAN’s research on patient familiarity with financial assistance programs

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Only 2 in 5 adults in the U.S. with a chronic condition report they understand their healthcare plan very well, and only 1 in 5 report high familiarity with financial assistance programs available to help patients in need cover the cost of prescription medications. This research was featured in an article by Specialty Pharmacy Continuum … Continued

Pharmaceutical Commerce features PAN commentary on insurance barriers delaying patient care

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Pharmaceutical Commerce recently featured commentary by Amy Niles, PAN’s chief mission officer, about insurance-related barriers to healthcare and their impact on patients. The article highlights key takeaways from the 2025 State of Patient Access Report and scorecard, published by the PAN Foundation’s Center for Patient Research. For the second year in a row, patients living … Continued

PAN joins 350 stakeholder letter urging Congress to extend Medicare telehealth services

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The PAN Foundation joined a letter alongside 350 healthcare organizations, medical associations, and patient advocacy groups urging Congress to act swiftly to prevent the expiration of Medicare telehealth services in September (2025), approving a minimum two-year extension if not making telehealth access permanent. Telehealth is a continuation of standing, bipartisan policy over the last five … Continued

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