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Give nowThe PAN Foundation submitted a letter to Congressional Representatives Kelly and Houlahan in support of the Harley Jacobsen Clinical Trial Participant Income Exemption Act (H.R. 4184). The proposed legislation aims to exempt all payments received by clinical trial participants from being counted towards their taxable gross income. Financial barriers are a major obstacle to clinical … Continued
Download a PDF of the summit schedule here. If you can’t view the PDF, below are images of each page that you can view and even save on your phone or device for quick access: Sunday Monday (3 parts) Tuesday
A national poll from the PAN Foundation’s Center for Patient Research that finds half of patients face chronic and rare condition drug denials from their health insurance plans was featured in HealthExec. About half of commercially insured patients reported in the survey that their insurance plan referred them to work with an external company to … Continued
PAN Foundation’s Center for Patient Research published the results of a July 2025 national poll with patients which found that more than half of adults with commercial health plans were told by their insurer that their medication for a chronic or rare disease was no longer covered. The poll findings were recently featured by HealthcareDive, … Continued
More than 68 million people in the U.S. are enrolled in Medicare, but not all enrollees opt to sign up for a Medicare Part D prescription drug benefit plan when they become eligible. Patients who do not enroll in a Medicare Part D drug plan incur a 1 percent penalty for every month they didn’t … Continued
Commercially insured patients are being referred to work with external programs to obtain access to their medications, causing delays and negative impacts on their health and life. A 2025 national poll from the PAN Foundation’s Center for Patient Research finds that in the past year, over half (54 percent) of insured adults with commercial insurance … Continued
The PAN Foundation announces the launch of Stronger Together, a national initiative grounded in local action to address healthcare access, affordability, and equity challenges nationwide. After nearly two years of groundwork and relationship-building, the Stronger Together initiative is now active in Atlanta, Georgia, and Dallas, Texas, with additional city-based task forces in development. “We’re not … Continued
The PAN Foundation’s recently launched copay assistance program for obesity medications was featured by Informa’s Access Insider. The program is the first charitable copay assistance fund to offer eligible patients help affording the copay for obesity treatments, including FDA-approved GLP-1 medications. The obesity copay fund closed within one hour of opening, a testament to the … Continued
The PAN Foundation today opened the first copay program for underinsured patients living with obesity offered by a charitable patient assistance foundation. The obesity copay fund is designed to help with the out-of-pocket medication costs for eligible patients and provides up to $1,000 per year in funding for covered obesity treatment. Obesity is a chronic … Continued
The PAN Foundation and 33 other health and patient advocacy organizations, as the Medicare Access for Patients Rx Coalition (MAPRx Coalition), submitted comments to the Centers for Medicare & Medicaid Services (CMS) regarding the revised model documents for the 2026 Medicare Prescription Payment Plan (MPPP) program. In their letter, the coalition commends CMS for providing … Continued
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