Lester (“Les”) wants his elected representatives in Congress to know that urgent reform is needed now to ensure people with serious and chronic conditions don’t have to make impossible trade-offs to pay for treatment. Tackling his diagnosis head-on Before COVID-19 quarantines consumed Manhattan in 2020, Les enjoyed spending his Tuesdays at a modified aerobics class … Continued
The PAN Foundation today opened a new financial assistance program for people living with hemolytic uremic syndrome. Hemolytic uremic syndrome is a rare kidney condition that occurs when damaged red blood cells form clots. Hemolytic uremic syndrome typically stems from severe bowel infections caused by certain strains of E. coli. It primarily affects the blood and blood vessels, can cause kidney failure, … Continued
The PAN Foundation today opened a financial assistance program for people living with paroxysmal nocturnal hemoglobinuria. Paroxysmal nocturnal hemoglobinuria, also known as Marchiafava–Micheli syndrome, is a rare disorder in which red blood cells break down prematurely, which can lead to bone marrow dysfunction and in some cases, life-threatening blood clots. According to the National Institute of Neurological Disorders and Stroke, there … Continued
The PAN Foundation today opened a new financial assistance program for people living with neuromyelitis optica spectrum disorder. Neuromyelitis optica spectrum disorder, also known as Devic’s disease and neuromyelitis optica, is a rare autoimmune disease where an individual’s immune system reacts against its own cells in the central nervous system, mainly in the optic nerves and spinal cord, but sometimes in the brain. … Continued
The PAN Foundation today opened a new financial assistance program for people living with myasthenia gravis. Myasthenia gravis is a chronic autoimmune, neuromuscular disease that causes weakness in the skeletal muscles, which the body uses for breathing and movement. According to the National Institute of Neurological Disorders and Stroke, approximately 132,400 people are living with myasthenia gravis in the U.S. About 15 to 20 percent … Continued
Jim looks forward to Thanksgiving every year. He has been living with prostate cancer for ten years, so he recognizes that every holiday he gets to share with his seven children, and ten grandchildren is a gift. Over the last decade, he has gone through radiation, come close to remission, and had the cancer spread to his … Continued
Before she found the PAN Foundation, Connie Bartoo’s mom was facing two tough choices: stop taking her medication or come up with tens of thousands of dollars to afford them. “Either my mother would have died younger, or my dad probably would have mortgaged the home,” Connie said. “They were married for 61 years and dated for … Continued
The PAN Foundation applauds the introduction of the bipartisan Help Ensure Lower Patient Copays Act in the U.S. House of Representatives by Reps. Donald McEachin (D-VA) and Rodney Davis (R-IL). This act would permanently ban copay accumulator programs in employer-sponsored and Affordable Care Act marketplace health insurance plans. Implemented by health insurance companies, copay accumulator programs prevent patients enrolled in the plan from using financial assistance from drug manufacturers to count toward their annual … Continued
The PAN Foundation and the Sickle Cell Disease Association of America, Inc. today announced they are launching a new partnership in support of people living with sickle cell disease, along with their loved ones. Sickle cell disease is an inherited blood disorder that affects red blood cells. The distorted red blood cells form a sickle or crescent shape and disrupt the normal flow … Continued
The PAN Foundation is disappointed that critical provisions to restructure Medicare Part D, including a cap on out-of-pocket prescription costs, have been eliminated from the administration’s proposed domestic tax and spending package, and urges Congress to restore these patient-centric policies. Despite overwhelming popularity across the country, and across party lines, the framework announced by President Joe Biden on Thursday did not include a cap on out-of-pocket … Continued
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