Latest Posts

New paroxysmal nocturnal hemoglobinuria disease fund opens

By

The PAN Foundation today opened a financial assistance program for people living with paroxysmal nocturnal hemoglobinuria. Paroxysmal nocturnal hemoglobinuria, also known as Marchiafava–Micheli syndrome, is a rare disorder in which red blood cells break down prematurely, which can lead to bone marrow dysfunction and in some cases, life-threatening blood clots. According to the National Institute of Neurological Disorders and Stroke, there … Continued

New neuromyelitis optica spectrum disorder fund opens

By

The PAN Foundation today opened a new financial assistance program for people living with neuromyelitis optica spectrum disorder. Neuromyelitis optica spectrum disorder, also known as Devic’s disease and neuromyelitis optica, is a rare autoimmune disease where an individual’s immune system reacts against its own cells in the central nervous system, mainly in the optic nerves and spinal cord, but sometimes in the brain. … Continued

New myasthenia gravis disease fund opens

By

The PAN Foundation today opened a new financial assistance program for people living with myasthenia gravis. Myasthenia gravis is a chronic autoimmune, neuromuscular disease that causes weakness in the skeletal muscles, which the body uses for breathing and movement.   According to the National Institute of Neurological Disorders and Stroke, approximately 132,400 people are living with myasthenia gravis in the U.S. About 15 to 20 percent … Continued

Jim: giving thanks for each day

By

Jim looks forward to Thanksgiving every year. He has been living with prostate cancer for ten years, so he recognizes that every holiday he gets to share with his seven children, and ten grandchildren is a gift.   Over the last decade, he has gone through radiation, come close to remission, and had the cancer spread to his … Continued

Jean Eberly: the gift of extra time with her grandkids

By

Before she found the PAN Foundation, Connie Bartoo’s mom was facing two tough choices: stop taking her medication or come up with tens of thousands of dollars to afford them.  “Either my mother would have died younger, or my dad probably would have mortgaged the home,” Connie said. “They were married for 61 years and dated for … Continued

The Help Ensure Lower Patient Copays Act would end harmful copay accumulator programs

By

The PAN Foundation applauds the introduction of the bipartisan Help Ensure Lower Patient Copays Act in the U.S. House of Representatives by Reps. Donald McEachin (D-VA) and Rodney Davis (R-IL). This act would permanently ban copay accumulator programs in employer-sponsored and Affordable Care Act marketplace health insurance plans.  Implemented by health insurance companies, copay accumulator programs prevent patients enrolled in the plan from using financial assistance from drug manufacturers to count toward their annual … Continued

New partnership with Sickle Cell Disease Association of America, Inc.

By

The PAN Foundation and the Sickle Cell Disease Association of America, Inc. today announced they are launching a new partnership in support of people living with sickle cell disease, along with their loved ones.   Sickle cell disease is an inherited blood disorder that affects red blood cells. The distorted red blood cells form a sickle or crescent shape and disrupt the normal flow … Continued

The proposed reconciliation bill falls short for Medicare beneficiaries

By

The PAN Foundation is disappointed that critical provisions to restructure Medicare Part D, including a cap on out-of-pocket prescription costs, have been eliminated from the administration’s proposed domestic tax and spending package, and urges Congress to restore these patient-centric policies.  Despite overwhelming popularity across the country, and across party lines, the framework announced by President Joe Biden on Thursday did not include a cap on out-of-pocket … Continued

A milestone in support: 1 million patients served

By

Dear friends,  It is my great privilege to announce that the PAN Foundation has reached a huge organizational milestone, surpassing 1 million grant recipients served.   Since I joined PAN in September, I have had a chance to speak with many of our staff members, board members, and supporters and I have heard the same thing from … Continued

Extra Help enrollment partnership with TailorMed expanding

By

The PAN Foundation and TailorMed announced today the expansion of their joint initiative to help eligible Medicare Part D patients enroll in the Social Security Administration’s Extra Help program, which can reduce their out-of-pocket medication costs by up to 85 percent. Following a successful pilot program earlier this year, PAN and TailorMed, a leading patient financial … Continued

  • Subscribe to news

    Sign up to receive PAN news, from helpful articles to action alerts.

    Subscribe today

  • Take action

    Voice your support for healthcare access and affordability.

    Take action now

  • Donate today

    Make your life-changing donation to support healthcare access.

    Donate online