The PAN Foundation and the Sickle Cell Disease Association of America, Inc. today announced they are launching a new partnership in support of people living with sickle cell disease, along with their loved ones.
Sickle cell disease is an inherited blood disorder that affects red blood cells. The distorted red blood cells form a sickle or crescent shape and disrupt the normal flow of nutrition and oxygen throughout the body. It’s a chronic disease that affects the circulatory system.
The Centers for Disease Control and Prevention estimate that 100,000 Americans are living with sickle cell disease.
“We are thrilled to partner with the Sickle Cell Disease Association of America, Inc. and support their mission to maximize the quality of life for those affected by this chronic condition,” said PAN President and CEO Kevin L. Hagan. “We hope our partnership will help people living with sickle cell, along with their families, ease their financial burdens and offer valuable connections to resources and community.”
The Sickle Cell Disease Association of America, Inc. (SCDAA) promotes research, provides educational resources, and facilitates partnerships that provide patients with genetic testing, counseling, case management, insurance counseling, and more.
“For nearly 50 years, our work has centered around supporting people affected by the sickle cell conditions and creating connections that advocate for their well-being while we search for a cure,” said SCDAA CEO Beverly Francis-Gibson. “We are thrilled to work with PAN to combine co-pay assistance with our collective resources for the betterment of this population.”
Patients who qualify for the PAN Foundation’s Sickle Cell Disease Assistance Program are eligible to receive $4,000 per year in financial assistance.
To get financial assistance for sickle cell disease, patients must:
- Be getting treatment for sickle cell disease.
- Have Medicare health insurance that covers the qualifying medication or product.
- Have an income that falls at or below 500 percent of the federal poverty level.
How to apply
Patients or caregivers applying on their behalf can apply for assistance using the PAN Foundation’s online patient portal. To apply on behalf of a patient, providers can use the provider portal, while pharmacy staff can use the pharmacy portal. A series of how-to guides are also available for the patient portal, including common tasks like creating an account and applying for assistance online. PAN grant recipients may also qualify for transportation assistance to allow them to get to doctor’s appointments and pharmacy visits.
About the PAN Foundation
The PAN Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications.
Since 2004, we have provided more than 1 million underinsured patients with $4 billion in financial assistance. Partnering with generous donors, healthcare providers, and pharmacies, we provide the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Learn more at panfoundation.org.
About the Sickle Cell Disease Association of America, Inc.
Sickle Cell Disease Association of America, Inc. (SCDAA) is the leader in promoting and advancing initiatives focused on people affected by sickle cell conditions worldwide.
For more than 45 years, SCDAA and its 46-member organizations have demonstrated how community-based organizations can work as partners with medical facilities and local and state government agencies to pursue national health care objectives. Learn more at sicklecelldisease.org.
Liz Eckert, Senior Director of Marketing and Communications
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