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Give nowInterest in clinical trials is high among members of the LGBTQ community and people of color, though participation rates are “alarmingly low,” according to the Opening Doors to Clinical Trials survey from the PAN Foundation that was released recently. The Bay Area Reporter interviewed Amy Niles, Chief Mission Officer, and Tony Newburne, patient advocate and … Continued
Clinical trials have historically underrepresented Black people and other people of color. This lack of representation is concerning because these communities often experience higher rates and incidences of the diseases being studied. An article in BlackDoctor.org explored data published by the PAN Foundation’s Center for Patient Research which found that while 83 percent of respondents … Continued
Amy Niles, Chief Mission Officer, PAN Foundation was interviewed for an in-depth article in Fortune about the Medicare Prescription Payment Plan, a reform to Medicare Part D plans going into effect on January 1, 2025. This article focuses on what Medicare beneficiaries need to know about the Medicare Prescription Payment Plan, who is most likely … Continued
An increase in Part D plan premiums of double digits has been reported by some Medicare beneficiaries. In fact, a recent national poll from the PAN Foundation’s Cetner for Patient Research found that nearly one in three (28 percent) Medicare beneficiaries enrolled in Part D plans said the cost of the monthly premium for their … Continued
Today, the PAN Foundation expressed disappointment that the 2026 Notice of Benefit and Payment Parameters (NBPP) proposed rule does not address copay accumulators, which are programs implemented by insurance companies that affect how copay assistance is applied to deductible and out-of-pocket costs. Each year, the Centers for Medicare & Medicaid Services (CMS) propose, review, and … Continued
From September 23-25, 2024, the PAN Foundation hosted its second annual in-person Advocacy Action Summit in Washington, D.C., culminating with a National Day of Advocacy on Capitol Hill. A group of 63 passionate patient advocates from 25 U.S. states traveled to Washington D.C. to call for action—attending over 281 legislative meetings to share their stories … Continued
The PAN Foundation’s Chief Mission Officer, Amy Niles, joined the Pulmonary Hypertension Association (PHA) on a recent episode of their PH Insights podcast to discuss upcoming Medicare reforms and their potential impact on patient access and affordability. The PH Insights podcast works to amplify the voices of the pulmonary hypertension community through meaningful conversations with … Continued
The PAN Foundation’s study that reveals low patient awareness of upcoming 2025 Medicare changes is mentioned in an article on MarketWatch.com about the importance of paying attention to the details when making decisions during this year’s open enrollment. Medicare open enrollment runs October 15 through December 7, and most enrollees are not aware of the … Continued
The Patient Access Network (PAN) Foundation’s Opening Doors to Clinical Trials national initiative creates a movement to increase representation in clinical trials Despite low participation in clinical trials among people of color and LGBTQ+ individuals, new data released by the Patient Access Network (PAN) Foundation from a survey conducted in partnership with The Harris Poll, … Continued
The PAN Foundation’s 2024 Opening Doors to Clinical Trials Survey reveals that despite historically low participation rates, there is a high level of interest and a positive perception of clinical trials among LGBTQIA+ adults and people of color. Eighty-six percent of LGBTQIA+ adults and 83% of people of color said they have a positive perception … Continued
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