Latest Posts

Clinical Leader: interview with PAN advocate Bill Allen on his clinical trial journey

In their series on underserved patient enrollment in clinical trials, Clinical Leader interviewed Bill Allen, a member of the PAN Foundation Patient and Family Advisory Council, about his experience participating in a clinical trial for prostate cancer. In 2008, Allen had the opportunity to sign up for a clinical trial for a medication that would … Continued

PAN’s clinical trials initiative featured in interview with Clinical Leader

In the first part of their series on underserved patient enrollment, Clinical Leader interviewed Amy Niles, PAN Foundation’s Chief Mission Officer, about PAN’s efforts to improve access to affordable healthcare and clinical research for underserved populations. Niles speaks in depth about PAN’s Opening Doors to Clinical Trials initiative, a program that aims to improve health … Continued

Most insured adults lack confidence in navigating their healthcare plans, new polling data finds

A recent national poll from the PAN Foundation’s Center for Patient Research finds that 7 in 10 adults (72 percent) with health insurance are not confident navigating their healthcare plan. This lack of confidence was particularly pronounced among adults insured by Medicaid, 75 percent of whom reported lacking confidence in navigating their health plan. Other … Continued

MSN: Less than 1 percent of clinical trials include trans patients

Fewer than 1% of clinical trials in the United States include transgender or nonbinary patients. An article in MSN highlights the results of a PAN survey that LGBTQ+ individuals and people of color respondents have a positive view of clinical trials and a strong willingness to participate—but are not being invited to participate by clinicians. … Continued

Freda: finding strength in speaking out

Freda never imagined she would find herself in the same situation as the patients she supported in her long career as a physician assistant (PA)—unable to afford her healthcare.  “Not in a million years did I ever think that I would experience the same exasperation and confusion and hopelessness of those very same people [I … Continued

Expanding Access to Care: PAN featured on NASP podcast about Medicare reforms

The PAN Foundation’s Chief Mission Officer, Amy Niles, recently joined National Association of Specialty Pharmacy President and CEO, Sheila Arquette, on an episode of the NASP Podcast. During the episode, titled “Expanding Access to Care with the PAN Foundation,” Amy highlighted the role advocacy and education play in enhancing access to care in the face … Continued

PAN joins letter from 74 healthcare organizations in support of the Clinical Trial Modernization Act

The PAN Foundation signed on to a letter to Congress with 73 other patient advocacy, public health, and provider organizations, expressing support for H.R. 8412, the Clinical Trial Modernization Act. Patient enrollment in clinical trials is an ongoing challenge and some population groups are underrepresented, including certain racial and ethnic groups, older adults, rural residents, … Continued

PAN submits comments to CMS on the 2026 Notice of Benefit and Payment Parameters proposed rule

In a letter to the Centers for Medicare & Medicaid Services, the PAN Foundation urged the administration to address the $10,000 annual out-of-pocket limitation on cost-sharing for Affordable Care Act (ACA) plans. PAN provided a methodology comparison that shows the annual maximum out-of-pocket limit for ACA plans is increasing more rapidly than employer-based Health Savings … Continued

PAN’s Atlanta community event and clinical trials initiative featured in citybiz

In early November, hundreds of Atlanta residents attended the Stronger Together: A Journey to Wellness Family Festival hosted by the PAN Foundation. The festival served as both a community health resource and an educational opportunity on key healthcare topics, such as upcoming Medicare reforms and participating in clinical trials.  This citybiz article highlights key aspects of the event, with … Continued

Oral health consortium and the PAN Foundation commend CMS for progress and urge expanded Medicare dental coverage

The Consortium for Medically Necessary Oral Health Coverage and nearly 250 leading organizations, including the PAN Foundation, commended the Centers for Medicare and Medicaid Services (CMS) for expanding access to medically necessary dental care linked to critical treatments like dialysis for end-stage renal disease. Together, these organizations also continue to urge Congress and the Administration … Continued