In their guide to 2025 Medicare open enrollment changes, Investopedia references the PAN Foundation’s guide to Medicare Part D reforms—specifically in their coverage of the Medicare Prescription Payment Plan which launches on January 1, 2025. In 2025, patients can spread out the cost of medications evenly over a period of months rather than paying the … Continued
Clinical Leader interviewed PAN patient advocate and member of the Patient and Family Advisory Council, Tony Newburne, about his journey as a multiple myeloma patient, seeking out clinical trials and advocating for access to healthcare for others. At the age of 39, Newburne was diagnosed with high-risk multiple myeloma and underwent a series of treatments … Continued
In their series on underserved patient enrollment in clinical trials, Clinical Leader interviewed Bill Allen, a member of the PAN Foundation Patient and Family Advisory Council, about his experience participating in a clinical trial for prostate cancer. In 2008, Allen had the opportunity to sign up for a clinical trial for a medication that would … Continued
In the first part of their series on underserved patient enrollment, Clinical Leader interviewed Amy Niles, PAN Foundation’s Chief Mission Officer, about PAN’s efforts to improve access to affordable healthcare and clinical research for underserved populations. Niles speaks in depth about PAN’s Opening Doors to Clinical Trials initiative, a program that aims to improve health … Continued
A recent national poll from the PAN Foundation’s Center for Patient Research finds that 7 in 10 adults (72 percent) with health insurance are not confident navigating their healthcare plan. This lack of confidence was particularly pronounced among adults insured by Medicaid, 75 percent of whom reported lacking confidence in navigating their health plan. Other … Continued
Fewer than 1% of clinical trials in the United States include transgender or nonbinary patients. An article in MSN highlights the results of a PAN survey that LGBTQ+ individuals and people of color respondents have a positive view of clinical trials and a strong willingness to participate—but are not being invited to participate by clinicians. … Continued
Freda never imagined she would find herself in the same situation as the patients she supported in her long career as a physician assistant (PA)—unable to afford her healthcare. “Not in a million years did I ever think that I would experience the same exasperation and confusion and hopelessness of those very same people [I … Continued
The PAN Foundation’s Chief Mission Officer, Amy Niles, recently joined National Association of Specialty Pharmacy President and CEO, Sheila Arquette, on an episode of the NASP Podcast. During the episode, titled “Expanding Access to Care with the PAN Foundation,” Amy highlighted the role advocacy and education play in enhancing access to care in the face … Continued
The PAN Foundation signed on to a letter to Congress with 73 other patient advocacy, public health, and provider organizations, expressing support for H.R. 8412, the Clinical Trial Modernization Act. Patient enrollment in clinical trials is an ongoing challenge and some population groups are underrepresented, including certain racial and ethnic groups, older adults, rural residents, … Continued
In a letter to the Centers for Medicare & Medicaid Services, the PAN Foundation urged the administration to address the $10,000 annual out-of-pocket limitation on cost-sharing for Affordable Care Act (ACA) plans. PAN provided a methodology comparison that shows the annual maximum out-of-pocket limit for ACA plans is increasing more rapidly than employer-based Health Savings … Continued
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