The PAN Foundation and Patient Advocate Foundation announced a strategic merger in March 2026. In the meantime, nothing is changing for patients. You can continue to apply for and use financial assistance from the PAN Foundation through panapply.org or by calling us at 1-866-316-7263. You can learn more about the announcement at uniting.patientadvocate.org.
Diagnosis codes
ICD-10: F84.2
About the disease
Rett syndrome (RS or RTT) is a rare, genetic neurological disorder that causes a loss of motor and spoken language skills, as well as other physical and neurologic impairments early in life.
Source: National Institutes of Health
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