About the Disease

Paroxysmal nocturnal hemoglobinuria (PNH), also known as Marchiafava–Micheli syndrome, is a rare disease that is characterized by impaired bone marrow function and destruction of red blood cells. It is a rare disease that affects the circulatory system.

Source: National Institutes of Health

Related Organizations

Diagnosis Codes

ICD-10: D59.5

Clinical Trials

If you’ve ever wondered how to sign up for a clinical trial but aren’t sure where to start, visit PAN Foundation’s education hub to learn about safety, representation, and more. Read real stories from patients who participated in clinical trials, find a clinical trial that matches your interest, and call us to talk to a ComPANion Access Navigator for free, personalized help.

Alliance Partners

Patients can receive free education and support services.

The Aplastic Anemia & MDS International Foundation provides education and support to patients and families living with aplastic anemia, myelodysplastic syndrome, paroxysmal nocturnal hemoglobinuria, and related bone marrow failure diseases.