From January 2 through January 30, 2026, our contact center hours will be extended to 9:00 am – 7:00 pm ET, Monday through Friday. We are experiencing a high volume of calls. You can apply for grants, and manage grants and claims, 24/7 through your online portal account at panapply.org.
Diagnosis codes
ICD-10: Q85.00, Q85.01, Q85.02, Q85.03, Q85.09, Q85.89
About the disease
Neurofibromatosis is a group of genetic disorders that cause tumors to grow on nerve tissue, including the brain, spinal cord, and eyes.
Source: National Institutes of Health
More patient support
We encourage everyone, eligible or not, to sign up for FundFinder alerts and connect with other patient resources.
Help articles for providers
-
Subscribe to news
Sign up to receive PAN news, from helpful articles to action alerts.
Subscribe today -
-