PAN Foundation and Patient Advocate Foundation announced a strategic merger in March 2026. As we prepare to launch the TotalAssist program on July 1, you can continue to use your grant and apply for grants with no interruptions to your funding and services. Beginning May 27, PAN will no longer offer a disease fund wait list. When it launches, TotalAssist grants will be offered first-come, first-served, and you can sign up to get notified immediately when your fund opens. Learn more and sign up today.
Diagnosis codes
ICD-10: E76.29
About the disease
Mucopolysaccharidosis type VII (MPS VII), also known as Sly syndrome, is an ultra-rare genetic condition that affects the musculoskeletal system and most organs with varying severity in symptoms across individuals.
Source: National Institutes of Health
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