About the Disease
Inherited retinal disease (IRD), also known as inherited retinal disorder, is a disorder caused by an inherited gene mutation which can result in vision loss or blindness. IRD is a rare disease that affects the nervous system. Subtypes include retinitis pigmentosa, choroideremia, leber congenital amaurosis, juvenile macular degeneration and cone rod dystrophy.
Source: National Institutes of Health
Diagnosis Codes
ICD-10: H31.21, H35.3110, H35.3111, H35.3112, H35.3113, H35.3114, H35.3120, H35.3121, H35.3122, H35.3123, H35.3124, H35.3130, H35.3131, H35.3132, H35.3133, H35.3134, H35.3190, H35.3191, H35.3192, H35.3193, H35.3194, H35.3210, H35.3211, H35.3212, H35.3213, H35.3220, H35.3221, H35.3222, H35.3223, H35.3230, H35.3231, H35.3232, H35.3233, H35.3290, H35.3291, H35.3292, H35.3293, H35.351, H35.352, H35.353, H35.359, H35.361, H35.362, H35.363, H35.369, H35.371, H35.372, H35.373, H35.379, H35.50, H35.51, H35.52, H35.53 H35.54, H35.89, H44.20, H44.21, H44.22, H44.23, H44.2A1, H44.2A2, H44.2A3, H44.2A9, H47.211, H47.212, H47.213, H47.219, H47.22
Clinical Trials
If you’ve ever wondered how to sign up for a clinical trial but aren’t sure where to start, visit PAN Foundation’s education hub to learn about safety, compensation, and more. Read real stories from patients who participated in clinical trials, find a clinical trial that matches your interest, and call us to talk to a ComPANion Access Navigator for free, personalized help.
Alliance Partners
Patients can receive free education and support services.
Prevent Blindness provides education for everyone suffering with or impacted by blindness.
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