About the Disease

Amyloidosis is characterized by a build-up in amyloid protein in specific organs or throughout the body. It is a rare disease that affects multiple systems. Subtypes include hereditary amyloidosis, light chain amyloidosis (AL amyloidosis), and amyloid A (AA) amyloidosis (secondary amyloidosis).

Source: National Institutes of Health

Clinical Trials

If you’ve ever wondered how to sign up for a clinical trial but aren’t sure where to start, visit PAN Foundation’s education hub to learn about safety, compensation, and more. Read real stories from patients who participated in clinical trials, find a clinical trial that matches your interest, and call us to talk to a PAN trial navigator for free, personalized help. 

Diagnosis Codes

ICD-10: E85.0, E85.1, E85.2, E85.3 , E85.4, E85.81, E85.82,E85.89, E85.9

Alliance Partners

Patients can receive free education and support services.

The Amyloidosis Foundation provides education and support services for patients with all types of systemic amyloidosis.