Beginning June 26 at 5:30pm ET, PAN’s call center and portals will be closed as we transition to the new unified TotalAssist program. We encourage you to complete any enrollments, grant management tasks, or time-sensitive claim submissions prior to June 26. (Note, our contact center will also be closed on Friday, June 19 in observance of Juneteenth.)
Our new call center and TotalAssist portals will be available again starting July 1 at 8:30am ET. All active and recently expired (January 1, 2026, or later) PAN legacy grant information will be available again on July 1 via the TotalAssist portal. The new portal can be found at TotalAssist.org. The call center can be reached by calling toll free, 866-512-3861.
Diagnosis codes
ICD-10: E71.310, E71.318
About the disease
Long-chain fatty acid oxidation disorders (LC-FAODs) are rare genetic disorders that impact energy production and metabolism. LC-FAODs can present as chronic, severe energy deficiency, hypoglycemia, cardiomyopathy, and muscle weakness and exercise intolerance.
Source: National Institutes of Health
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