PAN Foundation and Patient Advocate Foundation announced a strategic merger in March 2026. As we prepare to launch the TotalAssist program on July 1, you can continue to use your grant and apply for grants with no interruptions to your funding and services. Beginning May 27, PAN will no longer offer a disease fund wait list. When it launches, TotalAssist grants will be offered first-come, first-served, and you can sign up to get notified immediately when your fund opens. Learn more and sign up today.
Diagnosis codes
ICD-10: G12.0, G12.1, G12.9
About the disease
Spinal muscular atrophy (SMA) is a group of hereditary diseases that progressively destroy motor neurons that control essential muscle activity such as speaking, walking, breathing and swallowing. It is a rare disease that affects the nervous system. Subtypes include SMA type 0, SMA type I (Werdnig-Hoffmann disease), SMA type II (Dubowitz disease), SMA type III (Kugelberg-Welander disease), and SMA type IV.
Source: National Institutes of Health
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