PAN joins Global Genes Global Advocacy Alliance

The PAN Foundation today announced that they have become a member of the Global Genes Global Advocacy Alliance, working together to support the 400 million people living with a rare disease around the world.

The Global Advocacy Alliance is a group of more than 600 nonprofit organizations and support groups who are committed to collaborating to change the way the world tackles rare diseases. It currently takes an average of nearly five years for patients to get an accurate diagnosis, and there are few U.S. Federal Drug Administration approved treatments available.

“Supporting people living with rare diseases has been a part of PAN’s mission since our inception, and we’re thrilled to become a member of the Global Advocacy Alliance to further expand our role in supporting patients,” said PAN President and CEO Kevin L. Hagan. “We look forward to working together with this global network to connect patients and their loved ones with the resources and support they need.”

Global Genes launched the Global Advocacy Alliance in 2022 to connect, empower, and inspire the rare disease community. About 75 percent of member organizations are U.S.-based.

“We are dedicated to providing hope and help to people living with rare diseases around the world through education, resources, and research—it’s our passion,” said Global Genes CEO Charlene Son Rigby. “We are grateful that PAN shares that passion for supporting the rare disease community and are excited to have them join our Global Advocacy Alliance.”

PAN provides financial assistance and support services for nearly 70 different chronic conditions, including many rare diseases. PAN and Global Genes are both members of the Rare Disease Diversity Coalition, where they work to promote health equity and reduce barriers to health for communities of color.

About the PAN Foundation 
The PAN Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications.

Since 2004, we have provided more than 1 million underinsured patients with $4 billion in financial assistance. Partnering with generous donors, healthcare providers, and pharmacies, we provide the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Learn more at

About Global Genes
Global Genes is a 501(c)(3) nonprofit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. In pursuit of that mission, Global Genes connects, empowers, and inspires the rare disease community to stand up, stand out, and become more effective on their own behalf⁠—helping to spur innovation, meet essential needs, build capacity and knowledge, and drive progress within and across rare diseases. Global Genes serves more than 400 million people around the globe, and nearly one in 10 Americans affected by rare diseases. If you or someone you love has a rare disease or are searching for a diagnosis, contact Global Genes at 949-248-RARE or visit the Resource Hub.