The PAN Foundation and the Gaucher Community Alliance today announced they are launching a new partnership to help people living with Gaucher disease, providing up to $10,200 per year in financial assistance and support services for patients and their caregivers or loved ones.
Gaucher disease is a rare genetic disorder resulting from a buildup of fatty substances in certain organs, particularly the spleen or liver, bones, and in certain types affecting the central nervous system. This causes a wide range of issues from mild disorder to fatal in early childhood. The National Organization for Rare Disorders estimates that there are about 6,000 people living with Gaucher disease in the U.S., though some experts believe the number affected is higher as a result of underreporting and misdiagnosis.
“The challenges of chronic disease are well documented, but the added challenge of a rare illness like Gaucher disease is that it is unknown to many. We are thankful to be able to connect our patients with the knowledge and services offered by the Gaucher Community Alliance,” said PAN President and CEO Kevin L. Hagan. “Coupled with PAN’s copay assistance, we will be able to offer expanded support to people living with Gaucher disease and their loved ones.”
The Gaucher Community Alliance works to support patients and their families through education, webinars, insurance guidance, and resources for treatment, providers, financial support, and more.
“This disease presents many challenges to the affected families, financially and emotionally, particularly when multiple members have a diagnosis,” said Gaucher Community Alliance Co-President Aviva Rosenberg, JD. “We’re thrilled to embark on this partnership with the PAN Foundation, and for the opportunity to connect the patients we serve with another financial resource for their out-of-pocket costs. Working together, we can help more families focus on their quality of life rather than the cost of their treatment.”
Patients who qualify for the PAN Foundation Gaucher Disease Fund are eligible to receive $10,200 per year in financial assistance.
To get financial assistance for Gaucher disease, patients must:
- Be getting treatment for Gaucher disease
- Have health insurance that covers the qualifying medication or product.
- Have an income that falls at or below 400 percent of the federal poverty level.
About the PAN Foundation
The PAN Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications.
Since 2004, we have provided more than 1 million underinsured patients with $4 billion in financial assistance. Partnering with generous donors, healthcare providers, and pharmacies, we provide the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Learn more at panfoundation.org.
About the Gaucher Community Alliance
The Gaucher Community Alliance (GCA) is a 501(c)(3) nonprofit organization for the patient community by the patient community. Our mission is to support patients with Gaucher disease and their families through peer-to-peer support and education, advocacy, patient and family resources, and networking. Increased collaboration and emotional support among patients living with all types of Gaucher disease may alleviate some of the burden associated with this rare disorder. Learn more at gauchercommunity.org.
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