About the Disease
Paroxysmal nocturnal hemoglobinuria, also known as Marchiafava–Micheli syndrome, is a rare disease that is characterized by impaired bone marrow function and destruction of red blood cells. It is a rare disease that affects the circulatory system.
Source: National Institutes of Health
Patients can receive free education and support services.
The Aplastic Anemia & MDS International Foundation provides education and support to patients and families living with aplastic anemia, myelodysplastic syndrome, paroxysmal nocturnal hemoglobinuria, and related bone marrow failure diseases.