Beginning June 26 at 5:30pm ET, PAN’s call center and portals will be closed as we transition to the new unified TotalAssist program. We encourage you to complete any enrollments, grant management tasks, or time-sensitive claim submissions prior to June 26.  (Note, our contact center will also be closed on Friday, June 19 in observance of Juneteenth.) 

Our new call center and TotalAssist portals will be available again starting July 1 at 8:30am ET. All active and recently expired (January 1, 2026, or later) PAN legacy grant information will be available again on July 1 via the TotalAssist portal. The new portal can be found at TotalAssist.org. The call center can be reached by calling toll free, 866-512-3861.

Diagnosis codes

ICD-10: H31.21, H35.3110, H35.3111, H35.3112, H35.3113, H35.3114, H35.3120, H35.3121, H35.3122, H35.3123, H35.3124, H35.3130, H35.3131, H35.3132, H35.3133, H35.3134, H35.3190, H35.3191, H35.3192, H35.3193, H35.3194, H35.3210, H35.3211, H35.3212, H35.3213, H35.3220, H35.3221, H35.3222, H35.3223, H35.3230, H35.3231, H35.3232, H35.3233, H35.3290, H35.3291, H35.3292, H35.3293, H35.351, H35.352, H35.353, H35.359, H35.361, H35.362, H35.363, H35.369, H35.371, H35.372, H35.373, H35.379, H35.50, H35.51, H35.52, H35.53 H35.54, H35.89, H44.20, H44.21, H44.22, H44.23, H44.2A1, H44.2A2, H44.2A3, H44.2A9, H47.211, H47.212, H47.213, H47.219, H47.22

About the disease

Inherited retinal disease (IRD), also known as inherited retinal disorder, is a disorder caused by an inherited gene mutation which can result in vision loss or blindness. IRD is a rare disease that affects the nervous system. Subtypes include retinitis pigmentosa, choroideremia, leber congenital amaurosis, juvenile macular degeneration and cone rod dystrophy.

Source: National Institutes of Health

Next steps:

If this fund is open, and you are eligible, apply today. If this fund is closed, join the wait list. If a fund is open to wait list only, people currently on the wait list can apply using the link sent by email.

    • Your diagnosis and medications
    • Your provider’s contact information, including name, and phone number
    • Your health insurance carrier name and your insurance member ID
    • Your contact information, including email and social security number
    • Your adjusted gross annual household income

    Healthcare providers and pharmacies will be asked for additional information. Read our guide to enrolling your patients. If you don’t already have a healthcare provider PAN portal account, register for one before applying; registration may take 1 to 2 business days. For faster registration, call us during business hours.

  • To apply by phone, call us at 1-866-316-7263 Monday through Friday, 9:00 a.m. to 5:30 p.m. ET. Our representatives will help you with your pre-screening and application over the phone. Have your information ready. Translators are available if needed.

  • You can apply for an open fund if you are eligible anytime using our online application portal. Visit panapply.org and either login with your existing portal information or create your new account. Patients and caregivers, as well as healthcare professionals, can create accounts and apply online.

    Need help? Read our step-by-step guides to creating your account and applying, or call us for help at 1-866-316-7263, Monday through Friday, 9:00 a.m. to 5:30 p.m. ET.

    If a fund is closed, you can join the wait list in one of two ways: find your fund and join the wait list from our website, or login to your PAN portal account, find your fund, and join the wait list.

  • Sometimes, we may conditionally approve your application, and we will request that you verify your income for copay grants, or provide documentation of health insurance premium for insurance premium grants.

    Verify your income

    Verify your insurance premium

  • FundFinder is a free alert service that helps you track more than 200 patient assistance funds from nine different charitable organizations. You can sign up for email and text alerts when a fund you’re interested in opens at PAN or other organizations.

    Learn more and sign up

More patient support

We encourage everyone, eligible or not, to sign up for FundFinder alerts and connect with other patient resources.

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