New Fabry disease fund opens

The PAN Foundation today opened a new patient assistance program for people living with Fabry disease. Fabry disease is a disorder that results from the buildup of fat in cells throughout the body, particularly in cells lining blood vessels in the skin, kidneys, heart and nervous system. The National Fabry Disease Foundation estimates that nearly 8,000 Americans are living with Fabry disease. Qualifying patients are eligible to receive grants from PAN to pay for the deductibles, co-pays and coinsurance costs associated with their Fabry disease treatment.

“The PAN Foundation is pleased to announce the launch of our Fabry Disease Assistance Program,” said PAN President and CEO Daniel Klein. “We know that people living with Fabry disease can face significant challenges in adjusting to life after their diagnosis and paying for treatment. PAN is committed to eliminating the financial barriers to care by providing co-pay assistance and advocating for improved access to affordable care.”

Patients who qualify for the PAN Foundation’s Fabry Disease Assistance Program are eligible to receive $7,800 per year in financial assistance. Eligible patients must be getting treatment for Fabry disease; must reside and receive treatment in the United States; must have health insurance; and the medication for which they seek assistance must be covered by their insurance and must be listed on PAN’s list of covered medications. In addition, patients must fall at or below 500 percent of the Federal Poverty Level.

Patients, or advocates and caregivers applying on their behalf, can apply for assistance using the PAN Foundation’s online patient portal (, or by calling 1-866-316-7263, 9 a.m. to 7 p.m. ET, Monday through Friday. To learn more about PAN’s nearly 70 disease-specific programs, visit

About the PAN Foundation

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $3 billion in financial assistance to nearly one million patients who would otherwise be unable to afford their medications. To learn more, visit