New Pompe disease premium fund opens

The PAN Foundation today is proud to open a new Pompe disease premium fund, providing up to $4,700 per year to help eligible patients pay for their out-of-pocket health insurance premium costs.

Pompe disease is a rare, inherited disorder caused by the buildup of glycogen in certain organs, muscles, and tissues that causes progressive weakness. Though this buildup can accumulate everywhere in the body, the disease primarily affects the heart and skeletal muscle system. The National Institute of Neurological Disorders and Stroke estimates that this rare and often fatal disorder is present in every 1 in 40,000 people.

“With the support of a team of specialists, children diagnosed with Pompe disease can live well into adulthood, but this long-term care comes with high out-of-pocket costs,” said PAN President and CEO Kevin L. Hagan. “We’re proud to now offer financial assistance to help pay both for out-of-pocket copays and health insurance premium costs.”

Patients who qualify are eligible to receive $4,700 in financial assistance to pay for their health insurance premiums. Learn more about PAN Foundation health insurance premium funds and other support we provide on our website. 

Eligibility requirements

To get premium assistance for Pompe disease, patients must:   

• Be getting treatment for Pompe disease. 
• Have health insurance that covers the qualifying medication or product.  
• Have an income that falls at or below 400 percent of the federal poverty level.  

How to apply

Patients or caregivers who are applying for a PAN grant for the first time can apply by calling us at 1-866-316-7263 Monday through Friday, 9 a.m. to 5:30 p.m. ET.

Patients or caregivers who have had a PAN grant or joined one of our disease fund wait lists, including current grant recipients, can apply online through the PAN portal or by phone. Learn more about how to create and use a portal account.

To apply on behalf of a patient, healthcare professionals can use the online portal or apply over the phone.

Other patient support services at the PAN Foundation

Connect with a patient support organization 

The PAN Foundation recognizes that people with serious health conditions—and their families and caregivers—need support beyond financial assistance. That’s why we partner with more than 25 leading patient advocacy groups to connect people to communities that can offer support with the complex physical, emotional, and practical realities of life-threatening, chronic, and rare diseases. Learn more about our partners.  

About the PAN Foundation 
The PAN Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications.

Since 2004, we have provided more than 1.1 million underinsured patients with over $4 billion in financial assistance. Partnering with generous donors, healthcare providers, and pharmacies, we provide the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Learn more at panfoundation.org.