New neurofibromatosis fund opens

The PAN Foundation today is proud to open a new neurofibromatosis fund, providing up to $3,000 per year to help eligible patients pay for out-of-pocket deductible, copay, and coinsurance costs.

Neurofibromatosis (NF) encompasses a group of rare genetic disorders that cause tumors to grow on nerve tissue, including the brain, spinal cord, and eyes. There are three distinct types of NF: NF1, NF2, and schwannomatosis (SWN). NF1, also known as von Recklinghausen’s disease, accounts for 96 percent of cases and leads to skin alterations and bone issues.

The Neurofibromatosis Network estimates that there are about 120,000 people in the United States living with some form of NF.

“Neurofibromatosis is often diagnosed at a young age and while there are treatments for this rare disease, there is not yet a cure. We hope this financial assistance will provide some relief for those impacted by this disease and their loved ones,” said PAN Foundation President and CEO Kevin L. Hagan. “We are also thankful to the donors who have made this important new financial assistance program possible.”

Patients who qualify are eligible to receive $3,000 in financial assistance to pay for the deductibles, copays, and coinsurance costs associated with their treatment for neurofibromatosis.

Eligibility requirements

To get financial assistance for neurofibromatosis, patients must:   

• Be getting treatment for neurofibromatosis. 
• Have health insurance that covers the qualifying medication or product.  
• Have an income that falls at or below 400 percent of the federal poverty level.  

How to apply

Patients or caregivers applying on their behalf can apply for assistance using the PAN Foundation’s online patient portal. To apply on behalf of a patient, providers can use the provider portal, while pharmacists can use the pharmacy portal. A series of how-to guides are also available for the patient portal, including common tasks like creating an account and applying for assistance online.

Other patient support services at PAN Foundation

Apply for transportation assistance

PAN Foundation grant recipients may also qualify for transportation assistance to allow them to get to and from activities that improve their overall health outcomes, including accessing healthcare services, social connection and support, and healthy and nutritious food. Check your eligibility to learn more.

Connect with a patient support organization

The PAN Foundation recognizes that people with serious health conditions—and their families and caregivers—need support beyond financial assistance. That’s why we partner with more than 25 leading patient advocacy groups to connect people to communities that can offer support with the complex physical, emotional, and practical realities of life-threatening, chronic, and rare diseases. Learn more about our partners.  

About the PAN Foundation 
The PAN Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications.

Since 2004, we have provided more than 1.1 million underinsured patients with over $4 billion in financial assistance. Partnering with generous donors, healthcare providers, and pharmacies, we provide the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Learn more at panfoundation.org.