New long-chain fatty acid oxidation disorders fund opens

The PAN Foundation today is proud to open a new long-chain fatty acid oxidation disorders fund, providing up to $5,600 per year to help eligible patients pay for out-of-pocket deductible, copay, and coinsurance costs.

Long-chain fatty acid oxidation disorders (LC-FAODs), are rare, life-threatening genetic disorders in which the body is unable to break down certain fats into energy, and is characterized by chronic, severe energy deficiency. There are five LC-FAODs subtypes and most patients with the disease are diagnosed through newborn screening during infancy or in early childhood.

“Long-chain fatty acid oxidation disorders are a challenging and rare disease with a high mortality rate. Patients may experience life-threatening heart and metabolic issues throughout their lives, something no child should have to experience and no parent or loved one should have to navigate,” said PAN Foundation President and CEO Kevin L. Hagan. “We open this fund today with the hope that we can enable families to focus on what matters most, rather than how to afford their out-of-pocket costs.”

Patients who qualify are eligible to receive $5,600 in financial assistance to pay for the deductibles, copays, and coinsurance costs associated with their treatment for long-chain fatty acid oxidation disorders.

Eligibility requirements

To get financial assistance for long-chain fatty acid oxidation disorders, patients must:   

• Be getting treatment for long-chain fatty acid oxidation disorders. 
• Have health insurance that covers the qualifying medication or product.  
• Have an income that falls at or below 400 percent of the federal poverty level.  

How to apply

Patients or caregivers applying on their behalf can apply for assistance using the PAN Foundation’s online patient portal. To apply on behalf of a patient, providers can use the provider portal, while pharmacists can use the pharmacy portal. A series of how-to guides are also available for the patient portal, including common tasks like creating an account and applying for assistance online.

Other patient support services at the PAN Foundation

Apply for transportation assistance 

PAN Foundation grant recipients may also qualify for transportation assistance to allow them to get to and from activities that improve their overall health outcomes, including accessing healthcare services, social connection and support, and healthy and nutritious food. Check your eligibility to learn more. 

Connect with a patient support organization 

The PAN Foundation recognizes that people with serious health conditions—and their families and caregivers—need support beyond financial assistance. That’s why we partner with more than 25 leading patient advocacy groups to connect people to communities that can offer support with the complex physical, emotional, and practical realities of life-threatening, chronic, and rare diseases. Learn more about our partners.  

About the PAN Foundation 
The PAN Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications.  
 

Since 2004, we have provided more than 1.1 million underinsured patients with over $4 billion in financial assistance. Partnering with generous donors, healthcare providers, and pharmacies, we provide the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Learn more at panfoundation.org.