Ensure people with serious illnesses do not go without treatment because of out-of-pocket costs


Out-of-pocket costs should not prevent individuals with life-threatening, chronic, and rare diseases from obtaining their prescribed medications. 

The administration, Congress, and public and private insurers should set policies that ensure that out-of-pocket costs for prescription medications are affordable and do not prevent patients—especially those with lower or fixed incomes—from starting and staying on medically necessary treatments.

Out-of-pocket costs are harmful 

High out-of-pocket medication costs frequently prevent patients from accessing their prescribed medications. When faced with high out-of-pocket drug costs, patients with serious conditions take longer to start treatment, are less likely to fill their prescriptions, and experience increased interruptions in treatment.

I never liked asking for help, but with multiple sclerosis, the cost for meds to keep me active were staggering! Without the PAN Foundation’s help, there’s no way I could afford them on my Social Security income.

Don Schwader, Wisconsin, living with multiple sclerosis

Multiple studies have shown that even a monthly co-pay of $40 for a medication can cause many patients to forgo filling their prescriptions. 

With many essential medicines for serious conditions requiring much higher co-pays, high out-of-pocket costs prevent patients from the treatment they need and exacerbate widening economic insecurity for older adults.

Act now

Tell Congress we’re ready for Medicare reform to make prescriptions more affordable for millions.