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Patient Support Organizations

Chronic Illnesses 
Rare Diseases 

General Patient Support

Association of Asian Pacific Community Health Organizations (AAPCHO)

AAPCHO is a national association of community health organizations serving Asian Americans, Native Hawaiians, and other Pacific Islanders. They are dedicated to promoting advocacy, collaboration, and leadership that improves the health status and access of these medically underserved communities.

Black Women's Health Imperative 

The mission of the Black Women's Health Imperative is to advance health equity and social justice for Black women across the lifespan through policy and advocacy, education, research and leadership development.

Caregiver Action Network

The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the than 65 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

National Alliance for Hispanic Health
The National Alliance for Hispanic Health to improve the health of Hispanic communities and work with others to secure health for all. It is the nation’s foremost source of information on Hispanic health and a science-based and community driven advocate for health.



CANCER101 is a patient advocacy organization, founded in 2002, that provides the tools and resources patients and caregivers need to navigate the cancer journey and partner with their healthcare team to make informed medical decisions. 

Cancer and Careers 

Cancer and Careers empowers and educates people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events. Through a comprehensive website, free publications, career coaching, and a series of   support groups and educational seminars for employees with cancer and their healthcare providers and coworkers, Cancer and Careers strives to eliminate fear and uncertainty for working people with cancer. 

Cancer Support Community 

The Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women and children with any type or stage of cancer and to their loved ones. As the largest, professionally led nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise and nutrition classes and social activities for the entire family.

Facing Cancer Together 

Facing Cancer Together invites members of the community to join the conversation as they connect stories and lives of people touched by cancer. Designed to inspire and guide honest conversations about the many aspects of cancer, from treatment options close to home, to survivor and caregiver concerns, to healthy lifestyle choices for cancer prevention. 

Fifth Seasonal Financial 

Fifth Season Financial provides loans to people living with advanced cancer, secured solely by the face value of their life insurance policy. The goal of our "Loans for Living" program is to provide individuals access to discretionary cash locked up in their life insurance policy, while preserving a portion of the policy benefit for the insured's beneficiaries.

Imerman Angels 

Imerman Angels provides 1-on-1 relationships to give a cancer fighter or caregiver the chance to ask personal questions and get support from someone who has been there before. The service is absolutely free and helps anyone touched by any type of cancer, at any stage, at any age, living anywhere in the world. 


Livestrong Foundation looks at the experiences of the cancer community and develops solutions to help more people in more situations. Cancer Foundation Cancer Foundation focuses on helping people affected by cancer building strong support communities. Every day we provide free, personal websites to patients and caregivers to easily connect with family and friends, because every cancer patient should be supported through their cancer journey. 

Patient Power 

Patient Power is a patient education organization dedicated to connecting you to the knowledge of a community of cancer experts to empower you--or a loved one--to live well with cancer. From cutting-edge research and treatment news to coping with cancer in your everyday life, our community-based health centers cover the topics most important to you.   

Patient Empowerment Network

The Patient Empowerment Network (PEN) mission is to fortify cancer patients and caregivers globally with knowledge and tools, boosting their confidence and putting them in control of their healthcare journey to assist them in getting the state-of-the-art, personalized care they deserve.

Triage Cancer 

Triage Cancer is a national, nonprofit organization that provides education and resources addressing the continuum of cancer survivorship issues to survivors, caregivers, and health care professionals. Triage Cancer offers a national Speakers Bureau of cancer survivorship experts & cancer survivors to provide hospitals, cancer centers, community clinics, professional associations, cancer advocacy organizations, and other groups with tailored and turn-key seminars, teleconferences & conferences on cancer survivorship issues. Triage Cancer also provides online resources and hosts an educational blog.    

Rare Cancer Alliance 

Rare Cancer Alliance's primary purpose is to disseminate information and provide support to all childhood and adult rare cancer patients.

Blood Cancers (Leukemia's, Lymphoma's & Myeloma's)

Cutaneous Lymphoma Foundation

The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting every person with cutaneous lymphoma by promoting awareness and education, advancing patient care, and facilitating research. We exist to make sure that each person with cutaneous lymphoma gets the best care possible. 

International Myeloma Foundation (IMF)

IMF's mission is to improve the lives of myeloma patients. With over 196,000 members in 113 countries worldwide, the IMF is the oldest and largest organization dedicated to finding a cure for myeloma.

Leukemia & Lymphoma Society (LLS)

LL's mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. LLS is the world's largest voluntary health agency dedicated to blood cancer. LLS funds lifesaving blood cancer research around the world and provides free information and support services

Lymphoma Research Foundation (LRF)
LRF is the nation's largest non-profit organization devoted exclusively to funding innovative lymphoma research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer. LRF's mission is to eradicate lymphoma and serve those touched by this disease. 

Multiple Myeloma Research Foundation

MMRF relentlessly pursues innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.

Bone Metastases

Bone and Cancer Foundation 

Bone and Cancer Foundation provides information for cancer patients and family members on the causes and treatment of cancer involving bone. They advocate for increased government and private sector funding for research on cancer that involves the bone and related research areas.

Breast Cancer 

ABCD - After Breast Cancer Diagnosis 

ABCD provides free, personalized information and one-to-one support to people affected by breast cancer – patients, families and friends.

Alamo Breast Cancer Foundation

ABCF’s mission is to end breast cancer by assisting patients, informing policymakers and expanding knowledge through education and community outreach.

American Breast Cancer Foundation

American Breast Cancer Foundation's (ABCF) mission is to provide financial assistance for breast cancer screenings and diagnostic tests for uninsured and underserved individuals, regardless of age or gender. (BCT) is a non-profit service that encourages individuals affected by breast cancer to consider clinical trials as a routine option for care. 


FORCE was founded on the principle that no one should have to face hereditary breast and ovarian cancer alone. FORCE is a national non-profit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer. 

Living Beyond Breast Cancer

Living Beyond Breast Cancer (LBBC)'s mission is to connect people with trusted breast cancer information and a community of support.

Metastatic Breast Cancer Alliance

The Metastatic Breast Cancer Alliance unifies the efforts of its members to improve the lives of and outcomes for those living with metastatic breast cancer and their families through increasing awareness and education about the disease and advancing policy and strategic coordination of research funding specifically focused on metastasis that has the potential to extend life, enhance quality of life and ultimately to cure.


MyBCTeam is a social network for any woman in the United States that has ever been diagnosed with breast cancer. MyBCTeam makes it easy for women to find and connect with other women just like them, share tips and support, ask and answer questions, and even find first-hand referrals of great providers and breast cancer specialists.   

Sisters Network Inc.

Sisters Network® Inc. is the leading voice and only National African American Breast Cancer Survivorship Organization in the United States with affiliate chapters in 22 States, over 40 cities and a stellar record of service for 20 years. Each year we provide the only National Conference & 5K-Walk for the African American community. 

Susan G Komen Breast Cancer Foundation 

Komen has invested more than $2.5 billion to fulfill our promise, working to end breast cancer in the U.S. and throughout the world through ground-breaking research, community health outreach, advocacy and programs in more than 30 countries.

The Keep A Breast Foundation

Keep A Breast Foundation is a leading youth-focused, global, nonprofit breast cancer organization. Their mission is to eradicate breast cancer for future generations. They provide support programs for young people impacted by cancer and educate people about prevention, early detection, and cancer-causing toxins in our everyday environment.

The Pink Fund

The Pink Fund provides up to 90 days of non-medical financial aid to cover basic cost of living expenses, such as health insurance, housing, transportation and utilities. By providing this financial bridge, The Pink Fund helps to meet basic needs, while decreasing stress levels. These factors help breast cancer patients focus on healing and improve survivorship outcomes and quality of life. 

Chronic Myeloid Leukemia

 National CML Society 

The National CML Society was created by and for patients and their families in order to provide a centralized hub of information for this rare form of leukemia. Their mission is to bring you hope through educational resources, access to CML Specialists, and a living, breathing network of others that can share their personal CML experiences and successes.

 Colorectal Cancer 

Colon Cancer Alliance (CCA) 

CCA is a leading national patient advocacy organization dedicated to increasing screening rates and survivorship for people with colon cancer. 

Fight Colorectal Cancer 

Fight Colorectal Cancer demands a cure for colon and rectal cancer. We educate and support patients, push for changes in policy that will increase and improve research and empower survivors and those touched by cancer to raise their voices against the status quo

Colorectal CareLine

Colorectal CareLine is a patient/provider hotline designed to provide assistance to patients who have been diagnosed with colorectal cancer and are seeking education and access to care.

Cutaneous Lymphoma

 Cutaneous Lymphoma Foundation

The mission of the Cutaneous Lymphoma Foundation is to support every person with cutaneous lymphoma by promoting awareness and education, advancing patient care, and facilitating research.

Kidney Cancer (Renal Cell Carcinoma)

American Kidney Fund

The American Kidney Fund leads the nation in providing charitable assistance to dialysis patients who need help with the costs associated with treating kidney failure. In 2013, more than 87,000 people—1 out of every 5 U.S. dialysis patients—received assistance from the American Kidney Fund for health insurance premiums and other treatment-related expenses.

Kidney Cancer Association 

Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. KCA is the world’s first international charity dedicated specifically to the eradication of death and suffering from renal cancers. It is also by far the largest organization of its kind, with members in more than 100 countries.

National Kidney Foundation 

The National Kidney Foundation (NKF) is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families and tens of millions of Americans at risk.

Lung Cancer

American Lung Association

The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research.

Bonnie J. Addario Lung Cancer Foundation

Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest patient-driven philanthropies nationwide devoted exclusively to eradicating lung cancer through research, awareness, education, early detection and treatment.

Free to Breathe
Free to Breathe is a partnership of lung cancer survivors, advocates, researchers, healthcare professionals and industry leaders united in the belief that every person with lung cancer deserves a cure. They are dedicated to doubling lung cancer survival by 2022 by accelerating research, helping all patients understand their treatment options and ensuring patients benefit from innovative therapies.
Lung Cancer Alliance
Lung Cancer Alliance is the leading organization dedicated to saving lives and advancing research by empowering those living with and at risk for lung cancer.
LUNGevity Foundation is firmly committed to making an immediate impact on increasing quality-of-life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as providing community, support and education for all those affected by the disease.
 Melanoma International Foundation
Melanoma International Foundation develops personalized strategies with patients so they may live longer, better lives through our tollfree helpline, email, moderated forum and webinars with melanoma experts. Contact the helpline:  1-866-463-6663, Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it ; Moderated Forum:; Scientifically validated information at:

 Skin Cancer Foundation

The Skin Cancer Foundation has set the standard for educating the public and the medical profession about skin cancer, its prevention by means of sun protection, the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world’s most common cancer, now occurring at epidemic levels.

Multiple Myeloma
 Multiple Myeloma Research Foundation
The Multiple Myeloma Research Foumdation relentlessly pursues innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure. 
International Myeloma Foundation

The International Myeloma Foundation (IMF) is the world’s oldest and largest myeloma organization, reaching more than 350,000 members in 140 countries. Founded in 1990, the IMF is a nonprofit organization dedicated to improving the quality of life of myeloma patients and their families.  

Myeloproliferative Neoplasms
MPN Education & Advocacy International 
MPN Advocacy and Education International is dedicated to providing the knowledge, support, and resources patients will need as they adjust to living with an MPN through educational symposia in several cities each year, website access, free webcasts of each program, collateral materials, and direction to people, resources and other organizations that can help.
Ovarian Cancer

Foundation for Women’s Cancer

The Foundation for Women’s Cancer was founded by the Society of Gynecologic Oncology (SGO) in 1991. The Foundation for Women’s Cancer is a 501 (c) (3) not for profit organization dedicated to funding research and training, and ensuring education and public awareness of gynecologic cancer prevention, early detection and optimal treatment. 

National Ovarian Cancer Coalition

The mission of the NOCC is to save lives by fighting tirelessly to prevent and cure ovarian cancer, and to improve the quality of life for survivors. Through national programs and local Chapter initiatives, the NOCC's goal is to make more people aware of the early symptoms of ovarian cancer. In addition, the NOCC provides information to assist the newly diagnosed patient, to provide hope to survivors, and to support caregivers. 

          The Ovarian Cancer National Alliance

The Ovarian Cancer National Alliance connects survivors, women at risk, caregivers and health providers with the information and resources they need. OCNA ensures that ovarian cancer is a priority for lawmakers and agencies in Washington, DC, and throughout the country. OCNA helps communities raise their voices on behalf of every life that has been affected by this disease. 


Pancreatic Cancer

Pancreatic Cancer Action Network (PCAN)
Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.


 Pancreatic cancer research, education and awareness are at the core of Pancreatica.

Prostate Cancer

Prostate Cancer Foundation 

Prostate Cancer Foundation is firmly committed to curing prostate cancer. It is the leading philanthropic organization funding and accelerating research globally. 


Us TOO is a grassroots, non-profit prostate cancer education and support network of 325 support group chapters worldwide, providing men and their families with free information, materials and peer-to-peer support so they can make informed choices on detection, treatment options and coping with ongoing survivorship.

ZERO - The End of Prostate Cancer 

ZERO - The End of Prostate Cancer is a national nonprofit organization with the mission to end prostate cancer. As a leader in the fight against prostate cancer, ZERO advances research, encourages action, and provides education and support to men and their families.  ZERO's premier programs include the ZERO Prostate Cancer Challenge, the largest men's health event series in America. 

Thyroid Cancer 


TyhCa is a nonprofit organization consisted of thyroid cancer survivors, family members, and health care professionals. We are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends.

Light of Life Foundation  
The mission of Light of Life Foundation is to improve the quality of life of thyroid cancer patients through continual education of the public and medical community, and by promoting research and development to improve thyroid cancer care. 

Chronic Illness

Caring Voice Coalition 

Caring Voice Coalition is dedicated to improving the lives of patients with chronic illnesses. Our organization continues to accomplish its mission by offering outreach services that provide financial, emotional and educational support.


Asthma & Allergy Foundation of America (AAFA)

AAFA is dedicated to improving the quality of life for people with asthma and allergic diseases through education, advocacy and research.

 Auto-Immune Diseases

American Autoimmune Related Diseases Association (AARDA)

The AARDA is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient services in an effective, ethical and efficient manner.

Ankylosing Spondylitis
Spondylitis Association of America 
Spondylitis Association of America's mission is to be a leader in the quest to cure AS and related diseases, and to empower those affected to live life to the fullest.
Arthritis (Psoriatic & Rheumatoid)
Arthritis Foundation 
The Arthritis Foundation is committed to raising awareness and reducing the unacceptable impact of arthritis, a disease which must be taken as seriously as other chronic diseases because of its devastating consequences.
National Psoriasis Foundation 
The National Psoriasis Foundation is a non-profit, voluntary health agency dedicated to finding a cure for psoriasis and psoriatic arthritis and eliminating their devastating effects through research, advocacy and education.
Diabetes (Macular Diseases and Lower Extremity Ulcers)
American Association of Diabetes Educators
American Association of Diabetes Educators is the leading association for diabetes educators with more than 14,000 members, AADE advocates on behalf of diabetes educators and the patients they serve.

American Diabetes Association 

American Diabetes Association leads the fight against the deadly consequences of diabetes and fight for those affected by diabetes. They fund research to prevent, cure and manage diabetes, deliver services to hundreds of communities, provide objective and credible information and give voice to those denied their rights because of diabetes.

Taking Control of Your Diabetes

Taking Control of Your Diabetes educates and motivates people with diabetes to take a more active role in their condition and provides innovative and integrative continuing diabetes education to medical professionals caring for people with diabetes.

Growth Hormone Deficiency

Hormone Health Network

Hormone Health Network is the nation’s endocrine patient education resource. They are committed to helping patients have more informed discussions with their health care providers about hormone health, disease, and treatment. 

Human Growth Foundation
Human Growth Foundation provides support, services, and education to children with disorders of growth and adults with growth hormone deficiency.
Heart Failure 

American Association of Heart Failure Nurses (AAHFN)

The AAHFN is a specialty organization dedicated to advancing nursing education, clinical practice and research to improve heart failure patient outcomes. AAHFN serves as the interface for sharing ideas, translating research findings into practice and setting priorities for the future. The focus of AAHFN is on patients across all environments of care from the hospital, to the clinic, to home. AAHFN aims to set the standards for heart failure nursing care.

American Heart Association (AHA)

The American Heart Association is the nation’s oldest and largest voluntary organization dedicated to fighting heart disease and stroke. Founded by six cardiologists in 1924, AHA includes more than 22.5 million volunteers and supporters, funds innovative research, fights for stronger public health policies, and provides critical tools and information to save and improve lives. AHA’s nationwide organization includes 156 local offices and more than 3,000 employees. The American Stroke Association was created as a division in 1997 to bring together the organization’s stroke-related activities.

CardioSmart (American College of Cardiology)

CardioSmart is the patient education and empowerment initiative launched by the American College of Cardiology. Its mission is to help individuals prevent, treat and manage cardiovascular disease. CardioSmart is an online platform committed to providing accurate, un-biased information in an advertising-free environment. This extensive and interactive online resource provides valuable information on heart health through sections such as Heart Conditions, Drugs & Treatments, Heart Basics and Healthy Living.

Heart Failure Society of America Inc.

The Heart Failure Society of America, Inc. (HFSA) represents the first organized effort by heart failure experts from the Americas to provide a forum for all those interested in heart function, heart failure, and congestive heart failure (CHF) research and patient care. Founded in 1994, the mission of HFSA is to promote research related to all aspects of heart failure and to provide a forum for presentation of basic, clinical, and population-based research. In educating health care professionals through programs, publications, and other media in the areas of basic science, clinical medicine, patient management, and social, ethical and economic issues, HFSA enables these professionals to diagnose and treat heart failure and concomitant medical conditions more effectively. HFSA promotes and facilitates the formal training of physicians, scientists, and allied health care providers in the field of heart failure.

WomenHeart: The National Coalition for Women with Heart Disease

WomenHeart: The National Coalition for Women with Heart Disease was founded in 1999 by three women, Nancy Loving, Jackie Markham, and Judy Mingram who had heart attacks while in their 40s and faced many obstacles, including misdiagnosis, inadequate treatment, and social isolation. The National Coalition for Women with Heart Disease is a nonprofit, 501(c)(3) patient advocacy organization with thousands of members nationwide, including women heart patients and their families, health care providers, advocates and consumers committed to helping women live longer, healthier lives. WomenHeart supports, educates and advocates on behalf of the 42 million American women living with or at risk of heart disease. All WomenHeart programs are made possible by donations, grants and corporate partnerships.

Hepatitis B  
Hepatitis B Foundation 
Hepatitis B Foundation is dedicated to finding a cure and improving the quality of life for those affected by hepatitis B worldwide. Our commitment includes funding focused research, promoting disease awareness, supporting immunization and treatment initiatives, and serving as the primary source of information for patients and their families, the medical and scientific community & the general public.
Hepatitis Foundation International 
Works to eradicate chronic hepatitis for 500 million people globally. HFI is also dedicated to increasing and promoting health and wellness, as well as, reducing the incidence of preventable liver-related chronic diseases and lifestyles that negatively impact the liver.
National Viral Hepatitis Roundtable
The National Viral Hepatitis Roundtable (NVHR) is a coalition of over 250 organizations dedicated to reducing the incidence of infection, morbidity and mortality from hepatitis B and hepatitis C in the United States. We are a leader in advocating for an increased federal response to the viral hepatitis epidemic and for comprehensive access to hepatitis B and C prevention, testing, care, and treatment service. Our education program focuses on expanding the capacity of community organizations and medical providers to increase the number of people who are tested for hepatitis C, particularly among the Baby Boomer generation.  

Hepatitis C 

American Liver Foundation

American Liver Foundation's mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. 

Peer-based helpline services for all affected people ready to help meet the challenges of hepatitis C head-on such as where to get tested, how to get treatment, or help paying for lab work and medicines. All from someone who’s had hepatitis C touch their own life.
Hepatitis Foundation International 
Works to eradicate chronic hepatitis for 500 million people globally. HFI is also dedicated to increasing and promoting health and wellness, as well as, reducing the incidence of preventable liver-related chronic diseases and lifestyles that negatively impact the liver.
National Viral Hepatitis Roundtable
The National Viral Hepatitis Roundtable (NVHR) is a coalition of over 250 organizations dedicated to reducing the incidence of infection, morbidity and mortality from hepatitis B and hepatitis C in the United States. We are a leader in advocating for an increased federal response to the viral hepatitis epidemic and for comprehensive access to hepatitis B and C prevention, testing, care, and treatment service. Our education program focuses on expanding the capacity of community organizations and medical providers to increase the number of people who are tested for hepatitis C, particularly among the Baby Boomer generation.
 AIDS Healthcare Foundation
Los Angeles-based AIDS Healthcare Foundation (AHF), is a nonprofit global organization providing cutting-edge medicine and advocacy to over 350,000 patients in 36 countries. We are the largest provider of HIV/AIDS medical care in the U.S.
Community Access National Network (CANN)
CANN is a 501(c)(3) national nonprofit organization (formerly incorporated under the "Ryan White CARE Act Title II Community AIDS National Network") focusing on public policy issues relating to HIV/AIDS and Hepatitis C. Its coalition-based work is done on behalf of its patient advocacy groups, pharmaceutical partners and government agencies. 
HarborPath’s mission is to provide a streamlined process that ensures timely access to life-saving medications for uninsured and underinsured people living with HIV and other complex chronic conditions.
National Alliance of State and Territorial AIDS Directors (NASTAD)
NASTAD represents the nation's chief state health agency staff who have programmatic responsibility for administering HIV/AIDS and viral hepatitis healthcare, prevention, education, and supportive service programs funded by state and federal governments.

Idiopathic Thrombocytopenic Purpura 

ITP Foundation
The ITP Foundation is a non-profit organization established to raise awareness and improve the diagnosis and treatment of children and adolescents with Immune Thrombocytopenia (ITP).

National Heart Lung & Blood Foundation

The National Heart, Lung, and Blood Institute (NHLBI) provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood diseases and enhance the health of all individuals so that they can live longer and more fulfilling lives.

Inflammatory Bowel Disease (Crohn's Disease & Ulcerative Colitis)

Crohn's & Colitis Foundation of America
The Crohn's & Colitis Foundation of America (CCFA) is the largest voluntary non-profit health organization dedicated to finding cures for Inflammatory Bowel Diseases (IBD). CCFA’s mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases. The Foundation works to fulfill its mission by funding research, providing educational resources for patients and their families, medical professionals, and the public, and furnishing supportive services for those afflicted with IBD.

Macular Diseases

American Macular Degeneration Foundation 

 AMDF provides research and education for those with macular degeneration. 

Discovery Eye Foundation  
Discovery Eye Foundation is dedicated to finding treatments and cures to sight-threatening eye diseases such as age-related macular degeneration, diabetic retinopathy, glaucoma, keratoconus, ocular herpes and retinitis pigmentosa.

Multiple Sclerosis

 Consortium of Multiple Sclerosis Centers (CMSC)

CMSC's vision is to be the pre-eminent organization of MS health care providers improving the lives of those affected by MS.

Multiple Sclerosis Coalition

The vision of the MSC is to improve the quality of life for those affected by MS through a collaborative national network of independent MS organizations. Our mission is to increase opportunities for cooperation and provide greater leverage in collaborative and effective use of resources for the benefit of the entire MS community.

Multiple Sclerosis Foundation 

Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. They offer programming and support to keep them self-sufficient and their homes safe, while their educational programs heighten public awareness and promote understanding about the disease.

Multiple Sclerosis Association of America

Multiple Sclerosis Association of America (MSAA) is a leading resource for the entire MS community, improving lives today through vital services and support.


MyMSTeam is a social network for those living with Multiple Sclerosis in the United States. On MyMSTeam it is easy to find and connect with others just like you, share tips and support, ask and answer questions, and find first-hand referrals of great providers and MS specialists.  

National Multiple Sclerosis Society  
National MS Society mobilizes people and resources to drive research for a cure and to address the challenges of everyone affected by MS. Their vision is a world free of MS.

Organ Transplants 

American Transplant Foundation 

At the American Transplant Foundation, we believe no one should die while waiting for a lifesaving transplant. As a national 501(c)(3) non-profit organization, the Foundation strives to eliminate our country’s shortage of human transplant organs. Our supporters help the Foundation to raise awareness about organ donation, collaborate with other organ donation groups, and work toward better public policy

National Foundation for Transplants 

National Foundation for Transplants (NFT) empowers patients to create futures with hope. Originally named the Liver Organ Transplant Fund, it was changed to better convey the organization´s national reach and to clearly include patients needing tissue, bone marrow or other transplants.


American Bone Health

American Bone Health provides education, resources, and tools to help you understand bone disease and bone health.

National Osteoporosis Foundation

The National Osteoporosis Foundation is dedicated to preventing osteoporosis, promoting strong bones, and reducing human suffering through education, advocacy and research.

Parkinson's Disease  

The Parkinson’s disease Foundation (PDF)

The Parkinson’s disease Foundation (PDF) is one of the leading organizations in Parkinson’s disease research, education and public advocacy. PDF works for the nearly one million people in the US who live with Parkinson’s by funding scientific research while supporting people living with Parkinson’s through educational programs and services. PDF provides administrative support for the Alliance of Independent Regional Parkinson Organizations (AIRPO), a consortium with the shared goals of finding a cure for Parkinson’s and providing support for those who live with it. They provide support through the National HelpLine: (800) 457-6676. 

The National Parkinson Foundation (NPF) 

The National Parkinson Foundation (NPF) exists for more than fifty years and works to meet the needs in the care and treatment of people with Parkinson’s disease (PD). NPF has created a global network serving the needs of the Parkinson’s community including: 41 Centers of Excellence at top medical centers worldwide, including 26 in the U.S. and 15 internationally; Care Centers at leading community hospitals in North America; U.S. chapters and support groups serving 100,000 people with Parkinson’s and their families.

American Parkinson Disease Association 

American Parkinson Disease Association was founded in 1961 to Ease the Burden - Find the Cure for Parkinson's disease.  In that time APDA has been a funding partner in most of the major Parkinson’s disease scientific breakthroughs.  As the country’s largest grassroots organization serving more than 1 million Americans with Parkinson's disease and their families, APDA’s energy is focused on research, patient services, education and raising public awareness.  Funding includes support of a national network of regional Information and Referral (I&R) Centers, chapters, support groups, eight Centers for Advanced Research, and grants to fund the most promising research toward discovering the cause(s) and finding the cure for Parkinson’s.

The Michael J. Fox Foundation

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today. Today the largest nonprofit  funder of Parkinson’s drug development in the world, the Foundation has galvanized the search for a cure for Parkinson’s disease, and Michael J. Fox is widely admired for his tireless work as a patient advocate.

The Parkinson’s Action Network (PAN)

The Parkinson's Action Network is the unified voice of the Parkinson’s community advocating for better treatments and a cure. In partnership with other Parkinson’s organizations and our powerful grassroots network, we educate the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s. Based in Washington, DC, PAN represents The Michael J. Fox Foundation for Parkinson’s Research, the Parkinson’s Disease Foundation, The Parkinson Alliance, the National Parkinson Foundation, and the Davis Phinney Foundation.

Retinal Vein Occlusion

National Federation of the Blind

The National Federation of the Blind is the largest organization of the blind in America. Founded in 1940, the Federation has grown to include over 50,000 members.

Prevent Blindness

Prevent Blindness is the nation's leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight. Focused on promoting a continuum of vision care.

Retina Research Foundation 

The Retina Research Foundation's mission is to reduce retinal blindness worldwide by funding programs in research and education.

Rare Diseases

National Organization for Rare Disorders (NORD) 

NORD is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Cushing's Disease/Cushing's Syndrome

Cushing's Support & Research Foundation (CSRF)

CSRF provides information and support for Cushing’s Disease and Cushing’s Syndrome patients and their families; to increase awareness in the medical community and the general public about Cushing’s Disease and Cushing’s Syndrome; and to be a resource for information and support to health care professionals.


National Gaucher Foundation

National Gaucher Foundation is the only non-profit organization of its kind serving the Gaucher community in the US. Founded in 1984, the NGF funded millions of research dollars toward the cause, treatments and cure for Gaucher disease.

 Short Bowel Syndrome

Crohn's & Colitis Foundation of America
The Crohn's & Colitis Foundation of America (CCFA) is the largest voluntary non-profit health organization dedicated to finding cures for Inflammatory Bowel Diseases (IBD). CCFA’s mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases. The Foundation works to fulfill its mission by funding research, providing educational resources for patients and their families, medical professionals, and the public, and furnishing supportive services for those afflicted with IBD.
Oley Foundation 
Oley Foundation enriches the lives of those requiring home IV & tube feeding through education, outreach, & networking.

Short Bowel Syndrome Foundation 

Short Bowel Syndrome Foundation's (SBSF) mission is to educate, support, and empower patients who live with the condition and the healthcare providers who help patients to manage Short Bowel Syndrome. 


Ocular Immunology and Uveitis Foundation 

The Ocular Immunology and Uveitis Foundation's mission is to find cures for ocular inflammatory diseases, to correct the worldwide deficit of properly trained ocular immunologists, and to provide education and emotional support for those patients afflicted with ocular inflammatory disease.

 Tuberous Sclerosis Complex

Tuberous Sclerosis Alliance
Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected.

 Wilson Disease

Wilson Disease Association 

Wilson Disease Association is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Wilson disease.