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Patient Access Network Foundation and the National Osteoporosis Foundation Announce New Alliance to Provide Support for People Living With Postmenopausal Osteoporosis

 

For Immediate Release

PAN Foundation Contact:

Maggie Naples, Acting Director of Marketing and Communications

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Washington, DC, (August 1, 2018) - The Patient Access Network (PAN) Foundation and the National Osteoporosis Foundation (NOF) today announced they are launching a new alliance to offer a broad range of support for people living with postmenopausal osteoporosis. Working together, the PAN Foundation and the NOF will ensure that people living with postmenopausal osteoporosis have access to both financial and patient support services, providing them with the comprehensive support needed to best manage their disease.

“Our primary goal at the PAN Foundation is to ensure patients can access the critical treatments they need to improve their health and quality of life, but our efforts extend beyond helping with deductibles and co-pays,” said PAN President and CEO Daniel Klein. “Working closely with the National Osteoporosis Foundation will allow us to connect patients with resources that can help them better understand their conditions, adhere to their treatment regimens and link them to patient support communities.”

According to the NOF, osteoporosis occurs when the body loses too much bone, makes too little bone or both. As a result, bones become weak and may break from a fall or, in serious cases, from sneezing or minor bumps. About 54 million Americans have osteoporosis and low bone mass. Studies suggest that approximately one in two women and up to one in four men age 50 and older will break a bone due to osteoporosis.

“We are excited to kick off this partnership with the PAN Foundation, and provide extended support for our patients and families,” said Elizabeth Thompson, CEO of the National Osteoporosis Foundation. “Managing postmenopausal osteoporosis can be complex, and even more so when you factor in the financial implications. Working in partnership with PAN, we can help alleviate some of the financial pressures our patients are facing, allowing them to access the best medical care possible.”

Patients who qualify for the PAN Foundation’s Postmenopausal Osteoporosis Program are eligible to receive up to $500 per year in financial assistance. Eligible patients must be getting treatment for postmenopausal osteoporosis; must reside and receive treatment in the United States; must have Medicare health insurance; and the medication for which they seek assistance must be covered by Medicare and must be listed on PAN’s list of covered medications. In addition, patients must fall at or below 400 percent of the Federal Poverty Level.

About the PAN Foundation:

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $1 billion in financial assistance to nearly one million patients who would otherwise be unable to afford their medications. To learn more, visit www.panfoundation.org.

About the National Osteoporosis Foundation:

The National Osteoporosis Foundation (NOF) is the leading health organization dedicated to preventing osteoporosis and broken bones, promoting strong bones for life and reducing human suffering through programs of public and clinician awareness, education, advocacy and research. Established in 1984, NOF is the nation’s only health organization solely dedicated to osteoporosis and bone health. To learn more, visit www.nof.org.

National Patient Advocacy Organizations Come Together to Respond to the HHS Blueprint to Lower Drug Prices and Reduce Out-of-Pocket (OOP) Costs

 

For Immediate Release

PAN Foundation Contact:

Maggie Naples, Acting Director of Marketing and Communications

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Washington, DC, (July 17, 2018) - The Patient Access Network (PAN) Foundation, along with 52 of the nation’s leading patient advocacy groups, submitted a letter to the U.S. Department of Health and Human Services (HHS) in response to its Request for Information regarding the HHS Blueprint to Lower Drug Prices and Reduce Out-of-Pocket (OOP) Costs. Collectively, the organizations represent millions of patients who are living with serious, life-threatening, chronic, complex and disabling conditions. The letter is a culmination of the groups’ work in June, when they came together to share perspectives, concerns and recommendations on the Blueprint.

“Patients are the top priority for all of the patient advocacy groups that have signed the letter” said PAN President and CEO Dan Klein. “We agree with HHS that we need to change the system in a way that promotes the development of affordable innovations that improve health outcomes and lower both out-of-pocket cost and the total cost of care.”

We all share HHS’s concern that too many people abandon prescriptions at the pharmacy counter after learning of the OOP expense. The letter states, “When patients cannot afford their therapies, they cannot be adherent to their treatment plans, which can increase the total cost of care for these patients over time. Such an outcome hurts patients, their families and taxpayers—all who bear the burden of the higher cost of care."

Additionally, the patient advocacy community:

» Believes that OOP costs should not prevent people from accessing the medications they need. Until all patients have affordable access to necessary therapies, patient assistance programs must continue their critical work of providing much-needed financial support to those who require costly medications to maintain or regain their health, well-being and quality-of-life.

» Believes there is an opportunity to work together to improve the information that is available to patients. Information provided to support patients as consumers must be meaningful, easy to understand and actionable.

» Has concerns regarding placing too much responsibility on patients.

The letter addresses a number of important topics, including:

» The establishment of an OOP maximum in the Medicare Part D catastrophic phase

» Updating the Medicare Drug Dashboard

» Potential changes to specialty tiers and number of drugs covered in each category

» Moving some Medicare Part B drugs to Medicare Part D

» Potential changes to HHS regulations regarding drug co-payment discount cards

» Smoothing out OOP expenses/addressing the “seasonality” of OOP costs that triggers catastrophic coverage.

The groups caution against HHS undertaking policy changes without evidence-based research. HHS must be confident that any changes it makes will have the intended positive impact on individuals and families, with no unintended consequences that could harm patients and make prescription drugs less affordable and accessible.

Collectively, the patient advocacy community stands ready to work with HHS to implement policies which ensure all patients in need have access to the prescription therapies their healthcare providers prescribe for them.

To read the letter, click here.

For more information please contact Maggie Naples at This email address is being protected from spambots. You need JavaScript enabled to view it. or 202-661-8082.

About the PAN Foundation:

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $1 billion in financial assistance to more than half a million patients who would otherwise be unable to afford their medications. To learn more, visit www.panfoundation.org.

Patient Access Network Foundation and SHARE Cancer Support Announce New Alliance to Provide Support for People Living With Ovarian Cancer

 

For Immediate Release

PAN Foundation Contact:

Maggie Naples, Acting Director of Marketing and Communications

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Washington, DC, (July 13, 2018) - The Patient Access Network (PAN) Foundation and SHARE Cancer Support (SHARE) today announced they are launching a new alliance to offer a broad range of support for people living with ovarian cancer. Working together, the PAN Foundation and SHARE will ensure that people living with ovarian cancer have access to both financial and patient support services, providing them with the comprehensive support needed to best manage their disease.

“While our work at PAN centers on easing the financial burden for patients and families facing diseases like ovarian cancer, we recognize that financial assistance is only one part of the story,” said PAN President and CEO Dan Klein. “By partnering with SHARE, we can connect patients to additional services and resources, including support groups, educational programs, helplines, clinical trial assistance, survivor-patient navigation and other tools that can help them achieve healthier outcomes.”

The National Cancer Institute reports that in 2018, an estimated 22,240 people in the U.S. will be diagnosed with ovarian cancer.

“We are pleased to launch this alliance with the PAN Foundation, and provide another layer of support for our patients and families,” said SHARE Executive Director Jackie Reinhard. “We work to support the ovarian cancer communities in a variety of ways. By aligning with PAN, we can help remove cost barriers for many patients, allowing them to focus on what matters: their health.”

Patients who qualify for the PAN Foundation’s Ovarian Cancer Assistance Program are eligible to receive up to $3,700 per year in financial assistance. Eligible patients must be getting treatment for ovarian cancer; must reside and receive treatment in the United States; must have Medicare health insurance; and the medication for which they seek assistance must be covered by Medicare and must be listed on PAN’s list of covered medications. In addition, patients must fall at or below 500 percent of the Federal Poverty Level.

Patients, or advocates and caregivers applying on their behalf, can apply for assistance using the PAN Foundation’s online patient portal (www.panapply.org), or by calling 1-866-316-7263, 9 a.m. to 7 p.m. Eastern Time, Monday through Friday. To learn more about PAN’s nearly 70 disease-specific programs, visit panfoundation.org.

 

About the PAN Foundation:

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $3 billion in financial assistance to nearly 1 million patients who would otherwise be unable to afford their medications. To learn more, visit www.panfoundation.org.

 

About SHARE:

SHARE helps women with breast or ovarian cancer to get the information and support they need to make informed choices about their medical care. SHARE's survivor-led telephone support services, educational programs, support groups, and public-health initiatives empower patients and survivors to work through their feelings and fears, carefully consider their options, and take control of their health.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Patient Access Network Foundation Opens New Funds for Patients Living with Inherited Retinal Disease

 

For Immediate Release

PAN Foundation Contact:

Margaret Figley, Director of Communications

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.


Washington, DC, (February 7, 2018) - The Patient Access Network (PAN) Foundation today opened three new assistance funds for patients living with inherited retinal disease. Qualifying patients will be eligible for grants to help cover the out-of-pocket costs associated with their prescribed inherited retinal medications, insurance premiums and required travel costs related to their inherited retinal disease treatment.

“The PAN Foundation is excited to be able to help patients with the out-of-pocket treatment, travel and insurance premium costs related to their inherited retinal disease,” said PAN President and CEO Daniel Klein. “We are committed to easing patients’ financial burdens so that they can access the critical medications they need to best manage their conditions and focus on improving their health and quality of life.”

Patients who qualify for the PAN Foundation’s Inherited Retinal Disease Programs must be getting treatment for inherited retinal disease; must reside and receive treatment in the United States; must have health insurance; and the medication for which they seek assistance must be covered by their insurance and must be listed on PAN’s list of covered medications. In addition, patients must fall at or below 500 percent of the Federal Poverty Level. Patients who are eligible for the Inherited Retinal Disease Travel Program must be required to travel more than 20 miles (one way) to receive their prescribed treatment (exceptions to distance requirements are made for patients living in large metropolitan cities). 

PAN’s travel assistance covers approved transportation, lodging and ancillary travel expenses. Qualifying patients will receive a travel debit card and can use that card to make travel arrangements to and from medical treatments.

See below for information related to each program’s assistance amount.



Patients, or advocates and caregivers applying on their behalf, can apply for assistance using the PAN Foundation’s online patient portal (www.panapply.org), or by calling 1-866-316-7263, 9 a.m. to 7 p.m. Eastern Time, Monday through Friday. To learn more about PAN’s over 60 disease-specific programs, visit panfoundation.org.

About the PAN Foundation:
The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $3 billion in financial assistance to nearly 1 million patients who would otherwise be unable to afford their medications. To learn more, visit www.panfoundation.org.

 

 

Patient Access Network Foundation Opens New Hemophilia Patient Assistance Fund

 

For Immediate Release

PAN Foundation Contact:

Margaret Figley, Director of Communications

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Washington, DC, (January 9, 2018) - The Patient Access Network (PAN) Foundation today opened a new patient assistance program for people living with hemophilia. Hemophilia is a rare, inherited bleeding disorder in which blood does not clot properly due to low levels of proteins called “clotting factors.” Qualifying patients are eligible to receive grants for the out-of-pocket costs associated with their hemophilia treatment insurance premiums.

“The PAN Foundation is excited to alleviate the financial strain of the out-of-pocket premium costs for people living with hemophilia,” said PAN President and CEO Daniel Klein. “Thanks to our generous donors, many patients living with hemophilia will be able to access the treatment they need to best manage their conditions and focus on improving their health and quality of life.”

Patients who qualify for the PAN Foundation’s Hemophilia Premium Assistance Program are eligible to receive $4,500 per year in financial assistance. Eligible patients must be getting treatment for hemophilia; must reside and receive treatment in the United States; must have health insurance; and the medication for which they seek assistance must be covered by their insurance and must be listed on PAN’s list of covered medications. In addition, patients must fall at or below 400 percent of the Federal Poverty Level.

Patients, or advocates and caregivers applying on their behalf, can apply for assistance using the PAN Foundation’s online patient portal (www.panapply.org), or by calling 1-866-316-7263, 9 a.m. to 7 p.m. Eastern Time, Monday through Friday. To learn more about PAN’s more than 60 disease-specific programs, visit panfoundation.org.

About the PAN Foundation:

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $2.6 billion in financial assistance to nearly 1 million underinsured patients who would otherwise be unable to afford their medications. To learn more, visit www.panfoundation.org.

Patient Access Network Foundation Opens New Pulmonary Hypertension Patient Assistance Fund

 

For Immediate Release

PAN Foundation Contact:

Margaret Figley, Director of Communications

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Washington, DC, (January 2, 2018) - The Patient Access Network (PAN) Foundation today opened a new patient assistance program for patients living with pulmonary hypertension, a type of high blood pressure that affects the arteries connecting the heart to the lungs. Qualifying patients will be eligible for grants to help cover the out-of-pocket costs associated with their prescribed pulmonary hypertension medications.

“Thanks to the generosity and support of our donors, the PAN Foundation is able to alleviate the financial strain of the out-of-pocket treatment costs for people living with pulmonary hypertension,” said PAN President and CEO Daniel Klein. “The PAN team is committed to easing patients’ financial burdens so that they can access the critical medications they need to best manage their conditions and focus on improving their health and quality of life.”

Patients who qualify for the PAN Foundation’s Pulmonary Hypertension Assistance Program are eligible to receive $5,300 per year in financial assistance. Eligible patients must be getting treatment for pulmonary hypertension; must reside and receive treatment in the United States; must have Medicare health insurance; and the medication for which they seek assistance must be covered by their insurance and must be listed on PAN’s list of covered medications. In addition, patients must fall at or below 500 percent of the Federal Poverty Level.

Patients, or advocates and caregivers applying on their behalf, can apply for assistance using the PAN Foundation’s online patient portal (www.panapply.org), or by calling 1-866-316-7263, 9 a.m. to 7 p.m. Eastern Time, Monday through Friday. To learn more about PAN’s more than 60 disease-specific programs, visit panfoundation.org.

About the PAN Foundation:

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $2.6 billion in financial assistance to nearly 1 million underinsured patients who would otherwise be unable to afford their medications. To learn more, visit www.panfoundation.org.

PAN Foundation Featured in Forbes’ 100 Largest U.S. Charities

 

The PAN Foundation is featured in Forbes’ 100 Largest U.S. Charities for 2017 list, ranking as the 23rd largest charity in the country.

 

 

 

 

Patient Access Network Foundation Opens New Acute Myeloid Leukemia Patient Assistance Fund

 

For Immediate Release

PAN Foundation Contact:

Margaret Figley, Director of Communications

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Washington, DC, (June 16, 2017) - The Patient Access Network (PAN) Foundation today opened a new patient assistance program for Medicare patients with acute myeloid leukemia (AML). Qualifying patients are eligible to receive grants for their out-of-pocket costs associated with their prescribed AML medications.

“The PAN Foundation is pleased to support people living with acute myeloid leukemia,” said PAN President and CEO Daniel Klein. “When people—and their families—receive a diagnosis like AML, the financial implications can be tremendous. We are committed to finding ways to ease those financial burdens, so that people living with acute myeloid leukemia can focus on feeling better, getting through their treatments and hopefully recovering.”

Patients who qualify for the PAN Foundation’s AML program are eligible to receive up to $5,500 per year in financial assistance. Eligible patients must be getting treatment for AML; must reside and receive treatment in the United States; must have Medicare health insurance; and the medication for which they seek assistance must be covered by Medicare and must treat the disease directly. In addition, patients must fall at or below 500 percent of the Federal Poverty Level.

Patients, or advocates and caregivers applying on their behalf, can apply for assistance using the PAN Foundation’s online patient portal (www.panapply.org), or by calling 1-866-316-7263, 9 a.m. to 5 p.m. Eastern Time, Monday through Friday. To learn more about PAN’s more than 50 disease-specific programs, visit panfoundation.org.

 

About the PAN Foundation:

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $2.5 billion in financial assistance to more than 700,000 patients who would otherwise be unable to afford their medications. To learn more, visit www.panfoundation.org.