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Patient Support Organizations

PAN Partner Organizations
Oncology
Chronic Illnesses 
Rare Diseases
Financial Assistance 


General Patient Support

Patient Empowerment Network

The Patient Empowerment Network (PEN) mission is to fortify cancer patients and caregivers globally with knowledge and tools, boosting their confidence and putting them in control of their healthcare journey to assist them in getting the state-of-the-art, personalized care they deserve.


Oncology

Cancer Support Community 

The Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women and children with any type or stage of cancer and to their loved ones. As the largest, professionally led nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise and nutrition classes and social activities for the entire family.

Facing Cancer Together 

Imerman Angels 

Imerman Angels provides 1-on-1 relationships to give a cancer fighter or caregiver the chance to ask personal questions and get support from someone who has been there before. The service is absolutely free and helps anyone touched by any type of cancer, at any stage, at any age, living anywhere in the world. 

LIVESTRONG Foundation

MyLifeLine.org Cancer Foundation 

MyLifeLine.org Cancer Foundation focuses on helping people affected by cancer building strong support communities. Every day we provide free, personal websites to patients and caregivers to easily connect with family and friends, because every cancer patient should be supported through their cancer journey. 

Patient Power 

Patient Power is a patient education organization dedicated to connecting you to the knowledge of a community of cancer experts to empower you--or a loved one--to live well with cancer. From cutting-edge research and treatment news to coping with cancer in your everyday life, our community-based health centers cover the topics most important to you.   

Triage Cancer 

Triage Cancer is a national, nonprofit organization that provides education and resources addressing the continuum of cancer survivorship issues to survivors, caregivers, and health care professionals. Triage Cancer offers a national Speakers Bureau of cancer survivorship experts and cancer survivors to provide hospitals, cancer centers, community clinics, professional associations, cancer advocacy organizations, and other groups with tailored and turn-key seminars, teleconferences, and conferences on cancer survivorship issues.  Triage Cancer also provides online resources and hosts an educational blog.    

Rare Cancer Alliance 

Blood Cancers (Leukemia's, Lymphoma's & Myeloma's)

Cutaneous Lymphoma Foundation

International Myeloma Foundation (IMF)

Leukemia & Lymphoma Society 

Lymphoma Research Foundation

Multiple Myeloma Research Foundation  

Bone Metastases

Bone and Cancer Foundation 

Breast Cancer 

ABCD - After Breast Cancer Diagnosis 

American Breast Cancer Foundation

BreastCancerTrials.org 

FORCE 

myBCTeam 

MyBCTeam is a social network for any woman in the United States that has ever been diagnosed with breast cancer. MyBCTeam makes it easy for women to find and connect with other women just like them, share tips and support, ask and answer questions, and even find first-hand referrals of great providers and breast cancer specialists.   

Susan G Komen Breast Cancer Foundation 

The Keep A Breast Foundation

The Pink Fund

The Pink Fund provides up to 90 days of non-medical financial aid to cover basic cost of living expenses, such as health insurance, housing, transportation and utilities. By providing this financial bridge, The Pink Fund helps to meet basic needs, while decreasing stress levels. These factors help breast cancer patients focus on healing and improve survivorship outcomes and quality of life. 

 Colorectal Cancer 

Colon Cancer Alliance (CCA) 

Colorectal Cancer Coalition (C3) 

Colorectal CareLine

Kidney Cancer (Renal Cell)

Kidney Cancer Association 

National Kidney Foundation 

The National Kidney Foundation (NKF) is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families and tens of millions of Americans at risk. For more information, visit www.kidney.org

Lung Cancer

Free to Breathe
Free to Breathe is a partnership of lung cancer survivors, advocates, researchers, healthcare professionals and industry leaders united in the belief that every person with lung cancer deserves a cure. They are dedicated to doubling lung cancer survival by 2022 by accelerating research, helping all patients understand their treatment options and ensuring patients benefit from innovative therapies. To order free patient resources, or to find a fundraising event near you, visit freetobreathe.org.  
 
Lung Cancer Alliance
 
Lung Cancer Online Foundation

Lungs For Life Foundation

Pancreatic Cancer

Pancreatic Cancer Action Network (PCAN)

Pancreatica 

Prostate Cancer

Prostate Cancer Foundation 

UsToo

ZERO - The End of Prostate Cancer 

ZERO - The End of Prostate Cancer is a national nonprofit organization with the mission to end prostate cancer. As a leader in the fight against prostate cancer, ZERO advances research, encourages action, and provides education and support to men and their families.  ZERO's premier programs include the ZERO Prostate Cancer Challenge, the largest men's health event series in America. 

Skin Cancer (Basal Cell Carcinoma)

 Skin Cancer Foundation

Thyroid Cancer 

ThyCa

Light of Life Foundation  
 

Chronic Illness

Caring Voice Coalition 

Ankylosing Spondylitis

Spondylitis Association of America 

Arthritis (Psoriatic & Rheumatoid)

Arthritis Foundation 

Diabetes (Diabetic Foot Ulcers)

American Diabetes Association 

Growth Hormone Deficiency

Hormone Health Network

Human Growth Foundation
 
Hepatitis B  
Hepatitis B Foundation 
 
National Viral Hepatitis Roundtable
The National Viral Hepatitis Roundtable (NVHR) is a coalition of over 250 organizations dedicated to reducing the incidence of infection, morbidity and mortality from hepatitis B and hepatitis C in the United States. We are a leader in advocating for an increased federal response to the viral hepatitis epidemic and for comprehensive access to hepatitis B and C prevention, testing, care, and treatment service. Our education program focuses on expanding the capacity of community organizations and medical providers to increase the number of people who are tested for hepatitis C, particularly among the Baby Boomer generation.  
 

Hepatitis C 

Better to Know C

Aspire® Patient Support Program 

Help-4-Hep
Peer-based helpline services for all affected people ready to help meet the challenges of hepatitis C head-on such as where to get tested, how to get treatment, or help paying for lab work and medicines. All from someone who’s had hepatitis C touch their own life.
 
National Viral Hepatitis Roundtable
The National Viral Hepatitis Roundtable (NVHR) is a coalition of over 250 organizations dedicated to reducing the incidence of infection, morbidity and mortality from hepatitis B and hepatitis C in the United States. We are a leader in advocating for an increased federal response to the viral hepatitis epidemic and for comprehensive access to hepatitis B and C prevention, testing, care, and treatment service. Our education program focuses on expanding the capacity of community organizations and medical providers to increase the number of people who are tested for hepatitis C, particularly among the Baby Boomer generation.
 
 
Hyperparathyroidism 

National Parathyroid Education Foundation 

Idiopathic Thrombocytopenic Purpura 

ITP Foundation

National Heart Lung & Blood Foundation

Inflammatory Bowel Disease (Crohn's Disease & Ulcerative Colitis)

Crohn's & Colitis Foundation of America
The Crohn's & Colitis Foundation of America (CCFA) is the largest voluntary non-profit health organization dedicated to finding cures for Inflammatory Bowel Diseases (IBD). CCFA’s mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases. The Foundation works to fulfill its mission by funding research, providing educational resources for patients and their families, medical professionals, and the public, and furnishing supportive services for those afflicted with IBD.

Macular Diseases

American Macular Degeneration Foundation 

Discovery Eye Foundation  

Multiple Sclerosis

Multiple Sclerosis Foundation 

MyMSTeam

MyMSTeam is a social network for those living with Multiple Sclerosis in the United States.  On MyMSTeam is it easy to find and connect with others just like you, share tips and support, ask and answer questions, and find first-hand referrals of great providers and MS specialists.  

National Multiple Sclerosis Society  

Organ Transplants 

American Transplant Foundation 

National Foundation for Transplants 

Osteoporosis 

Foundation for Osteoporosis Research & Education 

National Osteoporosis Foundation 

Psoriasis

National Psoriasis Foundation 

Retinal Vein Occlusion

Retina Research Foundation 


 

Rare Diseases

National Organization for Rare Disorders (NORD) 

Acromegaly 

Hormone Health Network 

Cushing's Disease/Cushing's Syndrome

Cushing's Support & Research Foundation 

Gaucher 

National Gaucher Foundation

 Short Bowel Syndrome

Crohn's & Colitis Foundation of America
 The Crohn's & Colitis Foundation of America (CCFA) is the largest voluntary non-profit health organization dedicated to finding cures for Inflammatory Bowel Diseases (IBD). CCFA’s mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases. The Foundation works to fulfill its mission by funding research, providing educational resources for patients and their families, medical professionals, and the public, and furnishing supportive services for those afflicted with IBD.
 
Oley Foundation 

Short Bowel Syndrome Foundation 

Uveitis 

Ocular Immunology and Uveitis Foundation 

 Tuberous Sclerosis Complex

Tuberous Sclerosis Alliance

 Wilson Disease

Wilson Disease Association